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Finding the Person in Electronic Health Records. A Mixed-Methods Analysis of Person-Centered Content and Language

Bibliographic Data

ID21617516
AuthorsBirgit Heckemann (0000-0003-4047-350X, University of Gothenburg, corresponding author), Maryam Chaaya (University of Gothenburg), Eva Jakobsson Ung (0000-0002-8955-6552, University of Gothenburg), Daniel S Olsson (0000-0002-9734-0786, University of Gothenburg), Sofie Jakobsson (0000-0001-5223-6363, University of Gothenburg)
Year2022
Volume37
Issue4
Pages418-424
Publication date2022-03-21
Open AccessYes
TypeARTICLE
VenueHealth Communication (JOURNAL)
Journal identifiersISSN: 1041-0236 • E-ISSN: 1532-7027
PublisherInforma UK Limited (PUBLISHER • GB)
DOI10.1080/10410236.2020.1846275
PMID33213210
OpenAlexW3099157283
LanguageEN
References cited30

The co-creation and sharing of documentation of person-centered care is important, but challenging in clinical practice. Online access to health records is considered essential to increase patient participation and empowerment in person-centered care provision. The aims of this study were (1) to identify the extent of person-centered content in medical inpatient records and discharge letters; (2) to describe the characteristics of the language and rhetoric used in discharge letters. This was a concurrent, mixed-methods study involving a deductive, quantitative analysis of person-centered content in 69 Patient Accessible Electronic Health Records from patients with pituitary tumors, and an iterative, qualitative language analysis of a nested sample of 57 discharge letters. Both the content and language of inpatient records were mostly patient-centered. Records were concerned with the documentation of symptoms and medical and care interventions. There was little person-centered documentation of patients' preferences, wishes and needs, and shared decision-making. In the discharge letters, written for the patients, some physicians had attempted to write in a person-centered way, using plain language and a narrative. However, most wrote in a style that was reflective of their discourse community, using abbreviations and medical terms. Established norms for documentation in healthcare are a barrier to person-centered documentation. Patients' needs and preferences about documentation should be explored to increase understanding of how person-centered documentation can be achieved in clinical practice

Content analysis · Electronic health record · Health care · Health records · Sociology · Chronic Disease Management Strategies · Computer Science · Health Literacy and Information Accessibility · Patient-Provider Communication in Healthcare · Psychology

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