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An analysis of different concepts of “identity” in the heritable genome editing debate

Bibliographic Data

ID21702582
AuthorsYing-Qi Liaw (0000-0002-6358-829X, University of Warwick, corresponding author)
Year2024
Volume27
Issue1
Pages121-131
Publication date2024-03-01
Open AccessYes
TypeARTICLE
VenueMedicine Health Care and Philosophy (JOURNAL)
Journal identifiersISSN: 1386-7423 • E-ISSN: 1572-8633
PublisherSpringer Science and Business Media LLC (PUBLISHER)
DOI10.1007/s11019-023-10189-1
PMID38189908
OpenAlexW4390661830
LanguageEN
Citations received2
References cited41

Human heritable genome editing (HHGE) involves editing the genes of human gametes and/or early human embryos. Whilst ‘identity’ is a key concept underpinning the current HHGE debate, there is a lack of inclusive analysis on different concepts of ‘identity’ which renders the overall debate confusing at times. This paper first contributes to reviewing the existing literature by consolidating how ‘identity’ has been discussed in the HHGE debate. Essentially, the discussion will reveal an ontological and empirical understanding of identity when different types of identity are involved. Here, I discuss genetic, numerical, qualitative and narrative and how each of them is relevant in the HHGE context. Secondly, given the different types of identity, the paper explores how we could navigate these different interpretations of identity in a way that promotes an inclusive and informed discussion between primary stakeholders and the general public in the HHGE debate. Here, I argue for and refine a multi-faceted concept of identity as a suitable framework for discussing the ethical and societal implications of HHGE because it not only could integrate different understandings of identity but also highlight the interconnectedness between these different understandings

Aesthetics · Biology · Epistemology · Identity formation · Linguistics · Medical law · Narrative · Philosophy of biology · Philosophy of medicine · Philosophy of science · Political science · Self-concept · Social science · Sociology · Biomedical Ethics and Regulation · CRISPR and Genetic Engineering · Law · Philosophy · Race, Genetics, and Society

  • The ethics of synthetic DNA

    Open Access•Adrián Villalba, Anna Smajdor et al.•Journal of Medical Ethics•2024

  • Laypeople's Views on the Narrative Identity and Societal Treatment of Genetically Modified People

    Open Access•Derek So, Yann Joly et al.•Bioethics•2026

  • Human Identity and Bioethics

    Open Access•David Degrazia•Human Identity and Bioethics•2005

  • Better Never to Have Been

    David Benatar•Better Never to Have Been•2006

  • Genome editing and ‘disenhancement’

    Open Access•Oliver Feeney, Vojin Rakić•Humanities and Social Sciences…•2021

  • Beyond safety

    Open Access•Mara Almeida, Robert Ranisch•Humanities and Social Sciences…•2022

  • He Jiankui ́s gene‐editing experiment and the non‐identity problem

    Open Access•Marcos Alonso, Julian Savulescu•Bioethics•2021

  • Germline genetic modification, CRSIPR, and human identity

    Open Access•Niklas Juth•Ethics Medicine and Public Health•2016

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    Open Access•Bruno Ribeiro, Lusiana Bengtsson et al.•Journal of Responsible Innovation•2018

  • Gene editing and disabled people

    Open Access•Iñigo De Miguel Beriain•Journal of Community Genetics•2020

  • Human genome editing and the identity politics of genetic disability

    Open Access•Felicity Boardman•Journal of Community Genetics•2019

  • Genome editing

    Open Access•Paul Martins, Michael Morrison et al.•New Genetics and Society•2020

  • Reinterpreting “genetic identity” in the regulatory and ethical context of heritable genome editing

    Open Access•Ying-Qi Liaw, Ilke Turkmendag et al.•New Genetics and Society•2021

  • Genes, genomes and identity. Projections on matter

    Open Access•Christine Hauskeller•New Genetics and Society•2004

  • The best experts

    Open Access•Alan Petersen•Social Science & Medicine•2006

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    Open Access•Margaret R Somers•Theory and Society•1994

Citations per year1
Citation span2024 - 2026 (3)
Highly citedNo

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