Monitoring the body
Grandmothers' ability to provide 'expert' care for grandchildren living with HIV in northwest Tanzania
Bibliographic Data
| ID | 2171522 |
|---|---|
| Authors | Josien Klerk (0000-0002-9165-4100, Leiden University College, Leiden University, The Hague, the Netherlands, corresponding author), Josien De Klerk |
| Year | 2020 |
| Volume | 27 |
| Issue | 1 |
| Pages | 17-31 |
| Publication date | 2020-01-02 |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Anthropology and Medicine (JOURNAL) |
| Journal identifiers | ISSN: 1364-8470 • E-ISSN: 1469-2910 |
| Publisher | Informa UK Limited (PUBLISHER • GB) |
| DOI | 10.1080/13648470.2019.1633112 |
| PMID | 31469322 |
| OpenAlex | W2970830098 |
| Language | EN |
| Citations received | 1 |
| References cited | 25 |
Drawing on long-term ethnographic fieldwork on older caregivers and their shifting roles since the introduction of antiretroviral therapy in northwest Tanzania, this article explores grandmothers' roles in caring for grandchildren who are HIV positive and on treatment. While AIDS treatment programmes usually focus on cultivating expert patients who can perform self-care, this study focuses on older caregivers and how they become experts in caring for their grandchildren living with HIV. How is expert care enacted and what supports or limits its quality? Based on observations and in-depth interviews, this article argues that grandmothers become 'expert caregivers' by merging knowledge acquired in the clinic and support groups with intimate practices of grandparental care. However, the grandmother's gendered and generational position within kin networks affects her ability to provide expert care. The findings indicate that in analysing treatment outcomes among adolescents, it is important to understand the broader family dynamic that influences the actual possibility of expert caregivers to support children living with HIV
Antiretroviral therapy · Ethnography · Family medicine · Focus group · Human immunodeficiency virus (HIV · Sociology · Tanzania · HIV/AIDS Research and Interventions · Intergenerational Family Dynamics and Caregiving · Medicine · Nursing · Poverty, Education, and Child Welfare · Psychology · Gerontology
The Republic of Therapy
The Logic of Care
The Quest for Therapy in Lower Zaire
Second Chances
Tracking the rise of the “expert patient” in evolving paradigms of HIV care
Challenges faced by elderly guardians in sustaining the adherence to antiretroviral therapy in HIV-infected children in Zimbabwe
Rethinking the family in the context of care for adolescents living with HIV in Swaziland
Common elements in self-management of HIV and other chronic illnesses
The Making and Unmaking of the Haya Lived World
More Hands in Complex ART Delivery? Experiences from the Expert Clients Initiative in Rural Uganda
Exploring the Care Relationship between Grandparents/Older Carers and Children Infected with HIV in South-Western Uganda
Lost to follow up’
Children's Children
The Aids House
Flexible kinship
Peer mentors, mobile phone and pills
A Body Like a Baby
Challenging the Paradigm
A Disease Unlike Any Other? Why HIV Remains Exceptional in the Age of Treatment
The Adopted Children of ART
We Are Just Supposed to Be Quiet
| Citations per year | 1 |
|---|---|
| Citation span | 2026 - 2026 (1) |
| Highly cited | No |