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We keep her status to ourselves

Experiences of stigma and discrimination among HIV-discordant couples in South Africa, Tanzania and Ukraine

Bibliographic Data

ID2177717
AuthorsLaetitia C Rispel (0000-0001-7806-6331, corresponding author), Allanise Cloete (0000-0001-6763-9675, Human Sciences Research Council), Carol A Metcalf, Carol Metcalf (Médecins Sans Frontières)
Year2015
Volume12
Issue1
Pages10-17
Publication date2015-01-01
Peer ReviewedYes
Open AccessYes
TypeARTICLE
VenueSAHARA-J Journal of Social Aspects of HIV/AIDS (JOURNAL)
Journal identifiersISSN: 1729-0376 • E-ISSN: 1813-4424
PublisherInforma UK Limited (PUBLISHER • GB)
DOI10.1080/17290376.2015.1014403
PMID25778765
PMCIDPMC4396513
OpenAlexW2111168509
LanguageEN
Citations received16
References cited36

In HIV-discordant relationships, the HIV-negative partner also carries the burden of a stigmatised disease. For this reason, couples often hide their HIV-discordant status from family, friends and community members. This perpetuates the silence around HIV-discordant relationships and impacts on targeted HIV prevention, treatment and counselling efforts. This article reports on experiences of stigma and discrimination among HIV-discordant couples in South Africa, Tanzania and Ukraine. During 2008, HIV-discordant couples who had been in a relationship for at least one year were recruited purposively through health-care providers and civil society organisations in the three countries. Participants completed a brief self-administered questionnaire, while semi-structured interviews were conducted with each partner separately and with both partners together. Interviews were analysed using thematic content analysis. Fifty-one couples were recruited: 26 from South Africa, 10 from Tanzania, and 15 from Ukraine. Although most participants had disclosed their HIV status to someone other than their partner, few were living openly with HIV discordance. Experiences of stigma were common and included being subjected to gossip, rumours and name-calling, and HIV-negative partners being labelled as HIV-positive. Perpetrators of discrimination included family members and health workers. Stigma and discrimination present unique and complex challenges to couples in HIV sero-discordant relationships in these three diverse countries. Addressing stigmatisation of HIV-discordant couples requires a holistic human rights approach and specific programme efforts to address discrimination in the health system

Family medicine · Psychiatry · Qualitative research · Social stigma · Socioeconomics · Sociology · Tanzania · Thematic analysis · HIV/AIDS Impact and Responses · HIV/AIDS Research and Interventions · Medicine · Psychology · Sex work and related issues

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    Open Access•Atem Bethel Ajong, Philip Nana Njotang et al.•Globalization and Health•2018

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    Open Access•Mantshi E Teffo, Laetitia C Rispel•Global Health Action•2017

  • Couple identity and well-being in Chinese HIV serodiscordant couples

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  • The experience and management of HIV stigma among HIV-negative adults in heterosexual serodiscordant relationships in New York City

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  • From Conceptualizing to Measuring HIV Stigma

    Open Access•Valerie A Earnshaw, Stephenie R Chaudoir•AIDS and Behavior•2009

  • New heterosexually transmitted HIV infections in married or cohabiting couples in urban Zambia and Rwanda

    Open Access•Kristin Dunkle, Kristin L Dunkle et al.•The Lancet•2008

  • Health-related stigma

    Mitchell G Wei, Mitchell G Weiss et al.•Psychology, Health & Medicine•2006

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    Erving Goffman•Stigma•2009

  • Community, Family, and Partner-Related Stigma Experienced by Pregnant and Postpartum Women with HIV in Ho Chi Minh City, Vietnam

    Open Access•Deborah Bain Brickley, Dang Le Dung Hanh et al.•AIDS and Behavior•2009

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    Victoria Frye, Princess Fortin et al.•AIDS Care•2009

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    Nelson Varas‐díaz, Nelson Varas-Díaz et al.•AIDS Care•2009

  • Disclosure of HIV results among discordant couples in Rakai, Uganda

    Robert Kairania, Ronald H Gray et al.•AIDS Care•2010

  • Changing patterns in HIV/Aids stigma and uptake of voluntary counselling and testing services

    Sumaya Mall, Keren Middelkoop et al.•AIDS Care•2013

  • Sero-silence and sero-sharing

    A Persson•AIDS Care•2008

  • Living with discordance

    Rebecca Bunnell, R E Bunnell et al.•AIDS Care•2005

  • Heterosexual couples confronting the challenges of HIV infection

    Nancy VanDevanter, Ann Stuart Thacker et al.•AIDS Care•1999

  • Stigma and discrimination experiences of HIV-positive men who have sex with men in Cape Town, South Africa

    Allanise Cloete, Leickness C Simbayi et al.•AIDS Care•2008

  • Disclosure among HIV-positive women

    Hannah J Gillett, Jennifer Parr•African Journal of AIDS Research•2010

  • Development of a Brief Scale to Measure Aids-Related Stigma in South Africa

    Open Access•Seth C Kalichman, Leickness C Simbayi et al.•AIDS and Behavior•2005

  • Fertility Intentions and Reproductive Health Care Needs of People Living with HIV in Cape Town, South Africa

    Open Access•Diane Cooper, Jennifer Moodley et al.•AIDS and Behavior•2009

  • Fertility intentions among HIV-infected, sero-concordant couples in Nyanza province, Kenya

    M Withers, Shari L Dworkin et al.•Culture Health & Sexuality•2013

  • Desire for fertility among HIV-seroconcordant and -discordant couples in Lusaka, Zambia

    Ryan Cook, Robert M Hayden et al.•Culture Health & Sexuality•2014

  • It [HIV] is part of the relationship’

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    Open Access•Jennifer N Sayles, Gery W Ryan et al.•Journal of Urban Health•2007

  • Understanding and Addressing Aids-Related Stigma

    A Castro, Paul Farmer•American Journal of Public Health•2005

  • A comparison of HIV stigma and discrimination in five international sites

    Open Access•Suzanne Maman, Laurie Abler et al.•Social Science & Medicine•2009

  • Life is still going on

    Open Access•Diane Cooper, John Harries et al.•Social Science & Medicine•2007

  • Stigma, fatigue and social breakdown

    Open Access•F Thomas•Social Science & Medicine•2006

  • HIV-related stigma

    Open Access•Wayne T Steward, Gregory M Herek et al.•Social Science & Medicine•2008

  • HIV and Aids-related stigma and discrimination

    Open Access•Richard Parker, Peter Aggleton•Social Science & Medicine•2003

  • Sexual relations and childbearing decisions of HIV-discordant couples

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    Open Access•William L Holzemer, Leana R Uys•SAHARA-J Journal of Social…•2004

Unique citing works16
Citations per year1,78
Citation span2017 - 2026 (10)
Citation velocitycurrent
Highly citedNo
Citation typesNeutral: 13

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