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Plataforma “Saúdes Raras”

Uma reviravolta no consumo de informação sobre doenças raras

Bibliographic Data

ID21859915
AuthorsPatrícia Saldanha (0000-0002-7041-129X, Universidade Federal Fluminense), Josir Cardoso Gomes (0000-0001-7629-1404, Instituto Brasileiro de Informação em Ciência e Tecnologia)
Year2025
Volume17
Issue1
Pagese237240
Publication date2025-06-30
Open AccessYes
TypeARTICLE
VenueSignos do Consumo (JOURNAL)
Journal identifiersISSN: 1984-5057 • E-ISSN: 1984-5057
PublisherUniversidade de São Paulo. Agência de Bibliotecas e Coleções Digitais (PUBLISHER)
DOI10.11606/issn.1984-5057.v17i1e237240
OpenAlexW4411928407
LanguageES

This article aims to bring to the debate on advertising communication, the first results of empirical research into the “Rare Health Platform,” an interactive technology produced in open code, based on the Cívis Platform and structured on the Social Advertising methodology. It has the participation of researchers, teachers, students and organizations run by people linked to the universe of orphan pathologies. The digital environment aims to strengthen practices to combat media disinformation on the part of the health market, which profits from the lack of information about these diseases. The initiative allows ordinary people to register their institutions and projects, in an intuitive and free way, strengthening the exchange of experience by those with the same interest. As initial results, the platform has 46 registered organizations, the participation of more than 40 students and the effective contribution of representatives of social movements

Biotechnology and Related Fields · Health, Nursing, Elderly Care · Medicine · Public Health in Brazil

Highly citedNo

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Open DOIOpen Access
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