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Developing guidelines for genomic research with Aboriginal and Torres Strait Islander peoples
Bibliographic Data
| ID | 21879460 |
|---|---|
| Authors | Sid Kaladharan (QIMR Berghofer Medical Research Institute), Miranda E Vidgen (0000-0003-4131-0390, QIMR Berghofer Medical Research Institute), John V Pearson (0000-0003-0904-4598, QIMR Berghofer Medical Research Institute), Victoria K Donoghue (0000-0002-3055-5782, QIMR Berghofer Medical Research Institute), David C Whiteman (0000-0003-2563-9559, QIMR Berghofer Medical Research Institute), Nicola Waddell (0000-0002-3950-2476, QIMR Berghofer Medical Research Institute), Gregory Pratt (0000-0002-3760-8541, QIMR Berghofer Medical Research Institute, corresponding author) |
| Year | 2021 |
| Volume | 6 |
| Issue | 11 |
| Pages | e007259 |
| Publication date | 2021-11-01 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | BMJ Global Health (JOURNAL) |
| Journal identifiers | ISSN: 2059-7908 • E-ISSN: 2059-7908 |
| Publisher | BMJ (PUBLISHER • GB) |
| DOI | 10.1136/bmjgh-2021-007259 |
| PMID | 34732514 |
| OpenAlex | W3210122258 |
| Language | EN |
| Citations received | 1 |
| References cited | 18 |
In health and medical research, guidelines are a set of statements and recommendations, whereby experts or stakeholders assess published literature to generate practical advice for a specific audience. This emphasis on guidelines development with expert consultation and published literature is not practical or inclusive when working in disciplines with minimal data and addressing issues that concern under-represented communities. Here we describe the process used for developing guidelines for the conduct of genomic research projects in partnership with Aboriginal and Torres Strait Islander peoples. A new technology with individual and community level ethical and social implications, and First Nations peoples with cultural and community expectations for research. We developed the guidelines through a consultation process that used participatory action research to engage with various stakeholders during multiple rounds of tailored activities. The end product, ‘Genomic Partnerships: Guidelines for Genomics Research with Aboriginal and Torres Strait Islander peoples of Queensland’ reflects the needs of the end-users and perspectives of the Aboriginal and Torres Strait Islander peoples, communities and organisations that participated. Through this process, we have identified recommendations for developing guidelines with other under-represented communities
Ask price · Business · Political science · Public health · Public relations · Ethics in Clinical Research · Indigenous Health, Education, and Rights · Indigenous Studies and Ecology · Medicine · Nursing
| Unique citing works | 1 |
|---|---|
| Citations per year | 0,33 |
| Citation span | 2023 - 2023 (1) |
| Citation velocity | historical |
| Highly cited | No |
| Citation types | Neutral: 1 |