Skip to main content

ETHNOS_APP

Home • Search • Journals • List 0

Developing a global practice-based framework of person-centred care from primary data

A cross-national qualitative study with patients, caregivers and healthcare professionals

Bibliographic Data

ID21881385
AuthorsAlessandra Giusti (0000-0003-2667-1665, King's College London, corresponding author), Panate Pukrittayakamee (0000-0002-6564-7433, Siriraj Hospital), Ghadeer Alarja (King Hussein Cancer Center), Lindsay Farrant (0000-0002-1997-429X, University of Cape Town), Joy Hunter (University of Cape Town), Olona Mzimkulu (University of Cape Town), Liz Gwyther (0000-0001-7602-6168, University of Cape Town), Nokuzola Williams (University of Cape Town), Kamonporn Wannarit (0000-0002-5395-7848, Siriraj Hospital), Lana Abusalem (0000-0003-1591-9725, King Hussein Cancer Center), Sawsan Alajarmeh (King Hussein Cancer Center), Waleed Alrjoub (0000-0001-6098-9891, King Hussein Cancer Center), Lakkana Thongchot (Siriraj Hospital), Satit Janwanishstaporn (0000-0003-2474-4939, Siriraj Hospital), Adib Edilbi (0000-0002-6026-9437, King Hussein Cancer Center), Ruba Al-Ani (0000-0002-4477-162X, King Hussein Cancer Center), Omar Shamieh (0000-0002-3635-8624, University of Jordan), Ping Guo (0009-0006-9654-4011, University of Birmingham), Kennedy Nkhoma (0000-0002-2991-8160, King's College London), Sridhar Venkatapuram (0000-0003-3076-0783, King's College London), R Harding (0000-0001-9653-8689, King's College London)
Year2022
Volume7
Issue7
Pagese008843
Publication date2022-07-01
Peer ReviewedYes
Open AccessYes
TypeARTICLE
VenueBMJ Global Health (JOURNAL)
Journal identifiersISSN: 2059-7908 • E-ISSN: 2059-7908
PublisherBMJ (PUBLISHER • GB)
DOI10.1136/bmjgh-2022-008843
PMID35831035
OpenAlexW4285097638
LanguageEN
Citations received4
References cited29

Introduction Person-centred care (PCC) is internationally recognised as a critical component of high-quality healthcare. However, PCC evolved in a few high-income countries and there are limited data exploring this concept across the vast majority of countries which are low- and middle-income. This study aimed to appraise and adapt a PCC model across three serious physical conditions in three middle-income countries and generate an evidence-based framework and recommendations for globally relevant PCC. Methods Cross-national, cross-sectional qualitative study. In depth, semistructured interviews conducted with: advanced cancer patients in Jordan (n=50), their caregivers (n=20) and healthcare professionals (HCPs) (n=20); chronic obstructive pulmonary disease patients in South Africa (n=22), their caregivers (n=19) and HCPs (n=22); heart failure patients in Thailand (n=14), their caregivers (n=10) and HCPs (n=12). Data were analysed using framework analysis. Santana et al ’s PCC model (2018) and Giusti et al ’s systematic review (2020) were used to construct an a priori coding frame for deductive analysis, with additional inductive coding for coding that did not fit the frame. Results The findings both reveal specific practical actions that contribute towards delivering PCC and highlight new cross-national domains of person-centredness: interdependency and collectivism; bringing care into the home and community; equity and non-discrimination; addressing health and illness within the context of limited resources; and workforce well-being. Conclusion The data suggest that PCC requires particular structural features of the healthcare system to be in place, such as professional education in PCC values and partnerships with community-based workers. These structures may better enable PCC processes, including tailored information sharing and providing genuine opportunities for patients to do the things that matter to them, such as making informed care decisions and sustaining social relationships. PCC must also accommodate a collectivist perspective and support the well-being of the workforce

Developing country · Economic growth · Health care · Interdependence · Low and middle income countries · Political science · Qualitative property · Qualitative research · Sociology · Workforce · Chronic Disease Management Strategies · Medicine · Nursing · Patient-Provider Communication in Healthcare · Primary Care and Health Outcomes

  • Skills to act from a Positive Health approach

    Open Access•Renske Visser, Martine Veehof et al.•Frontiers in Public Health•2025

  • We should care about informal carers

    Open Access•Natalie Winter, Rebecca Haddock•Health Policy•2025

  • Understanding patient and family experiences of critical care in Bangladesh and India

    Open Access•Rebecca Inglis, Meghan Leaver et al.•PLOS Global Public Health•2024

  • Protecting Personhood

    Open Access•Amélia Didier, Alvita Nathaniel et al.•Qualitative Health Research•2023

  • Rethinking the patient

    Open Access•C May, Carl R May et al.•BMC Health Services Research•2014

  • Culture and the self

    Hazel Rose Markus, Shinobu Kitayama•Psychological Review•1991

  • The Quality of Care

    Avedis Donabedian•JAMA•1988

  • Uncertainty in Illness

    Open Access•Merle H Mishel•Image: the Journal of Nursing…•1988

  • Global and regional mortality from 235 causes of death for 20 age groups in 1990 and 2010

    Open Access•R Lozano, Mohsen Naghavi et al.•The Lancet•2012

  • The Evolution of Medical Uncertainty

    Richard C Fox, Renee C Fox•The Milbank Memorial Fund…•1980

  • High-quality health systems in the Sustainable Development Goals era

    Open Access•Margaret E Kruk, Anna D Gage et al.•The Lancet Global Health•2018

  • Consolidated criteria for reporting qualitative research (Coreq)

    A Jaure, A Tong et al.•International Journal for Quality…•2007

  • The empirical evidence underpinning the concept and practice of person-centred care for serious illness

    Open Access•Alessandra Giusti, Kennedy Nkhoma et al.•BMJ Global Health•2020

  • How to practice person‐centred care

    Open Access•Maria J Santana, Maria Santana et al.•Health Expectations•2018

  • Addressing access barriers to health services

    Open Access•Bart Jacobs, Por Ir et al.•Health Policy and Planning•2012

  • Why The Nation Needs A Policy Push On Patient-Centered Health Care

    Ronald M Epstein, Kevin Fiscella et al.•Health Affairs•2010

  • Sample Size in Qualitative Interview Studies

    Open Access•Kirsti Malterud, Volkert Dirk Siersma et al.•Qualitative Health Research•2016

Unique citing works4
Citations per year1,33
Citation span2023 - 2025 (3)
Citation velocityrecent
Highly citedNo
Citation typesNeutral: 4

Tools

Open DOIOpen Access
Ethnos_APP • Open Source Project • MIT License • Frontend v2.0.0 • Privacy and Cookies • API Documentation: api.ethnos.app/docs • API Source Code: GitHub • DOI: 10.5281/zenodo.17049435 • Frontend Source Code: GitHub • DOI: 10.5281/zenodo.17050053 • cruz.rio.br • Expectantes Misericordiae