“Nothing is ever going to change if we don't start advocating for our child.”
Community-level disclosure and stigma management strategies among parents of internationally adopted children living with PHIV
Bibliographic Data
| ID | 22068080 |
|---|---|
| Authors | Amanda Bingaman (0000-0002-0776-2759, Elon University), Alison Brown (0000-0003-3998-7212, University of California, Los Angeles), Alison Hamilton, Bethany Houpt (Elon University), Rosemary Olivero (0000-0002-5417-4650, Helen DeVos Children's Hospital), Cynthia D Fair (0000-0002-5848-1359, Elon University, corresponding author), Cynthia Fair |
| Year | 2023 |
| Volume | 11 |
| Pages | 1091335-1091335 |
| Publication date | 2023-03-17 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Frontiers in Public Health (JOURNAL) |
| Journal identifiers | ISSN: 2296-2565 • E-ISSN: 2296-2565 |
| Publisher | Frontiers Media SA (PUBLISHER • CH) |
| DOI | 10.3389/fpubh.2023.1091335 |
| PMID | 37006538 |
| OpenAlex | W4327734501 |
| Language | EN |
| References cited | 24 |
Background The number of internationally adopted children living with perinatally-acquired HIV (IACP) in the U.S. is increasing, yet little is known about their families' experiences navigating HIV disclosure within a community context. This paper examines the lived experiences of adoptive parents as they navigate HIV disclosure and manage stigma toward their adopted children within their broader communities. Methods A purposive sample of parents of IACP was recruited at two pediatric infectious disease clinics and via closed Facebook groups. Parents completed two semi-structured interviews approximately one year apart. Interview questions included strategies parents used to reduce the impact of community level stigma that their child is likely to encounter as they mature. Interviews were analyzed using Sort and Sift, Think and Shift analytic approach. All parents (n = 24) identified as white and most ( n = 17) had interracial families, with children adopted from 11 different countries (range: age at adoption 1-15 years; range: age at first interview 2-19 years). Results Analyses revealed that parents serve as advocates for their child by both supporting more public HIV disclosure at times, but also applying indirect strategies such as working to improve outdated sex education material. Knowledge of HIV disclosure laws empowered parents to make informed decisions about who, if anyone, in the community needed to know their child's HIV status. Conclusion Families with IACP would benefit from HIV disclosure support/training and community-based HIV stigma reduction interventions
Nothing · Political science · Psychiatry · Public relations · Child Welfare and Adoption · HIV/AIDS Research and Interventions · Psychology · Reproductive Health and Technologies
Basics of qualitative research
The Association of Stigma with Self-Reported Access to Medical Care and Antiretroviral Therapy Adherence in Persons Living with HIV/Aids
The Association of HIV-Related Stigma to HIV Medication Adherence
Literally the hardest part about having a positive child is disclosure”
The geographic reach of community-based organizations in addressing HIV-related stigma in the Deep South
HIV-related stigma and health-related quality of life in women living with HIV in developed countries
Internalized stigma and HIV status disclosure among HIV-positive black men who have sex with men
Prepared but unprepared
Measuring HIV-related stigma among healthcare providers
HIV-related stigma in the UK then and now
How Does Stigma Affect People Living with HIV? The Mediating Roles of Internalized and Anticipated HIV Stigma in the Effects of Perceived Community Stigma on Health and Psychosocial Outcomes
HIV-Related Stigma among People with HIV and their Families
Revealing Concealable Stigmatized Identities
Matrix Analysis as a Complementary Analytic Strategy in Qualitative Inquiry
Secrets and Silence
Aids stigma in health services in the Eastern Caribbean
| Citation velocity | historical |
|---|---|
| Highly cited | No |