Skip to main content

ETHNOS_APP

Home • Search • Journals • List 0

Psychosocial and mental health challenges facing perinatally HIV-infected adolescents along the Kenyan coast

A qualitative inquiry using the socioecological model

Bibliographic Data

ID22070575
AuthorsStanley W Wanjala (0000-0003-1422-0162, Pwani University, corresponding author), Moses K Nyongesa (0000-0002-7761-0718, Kenya Medical Research Institute), Luchter (0000-0001-5235-5629, Liverpool School of Tropical Medicine), Stanley Luchters, A Abubakar (0000-0002-3686-7904, Pwani University, corresponding author)
Year2024
Volume12
Pages1379262-1379262
Publication date2024-07-23
Open AccessYes
TypeARTICLE
VenueFrontiers in Public Health (JOURNAL)
Journal identifiersISSN: 2296-2565 • E-ISSN: 2296-2565
PublisherFrontiers Media SA (PUBLISHER • CH)
DOI10.3389/fpubh.2024.1379262
PMID39109160
OpenAlexW4400929794
LanguageEN
Citations received4
References cited50

Background: The advent of antiretroviral therapy has led perinatally HIV-infected (PHI) adolescents to live long, fulfilling lives through lifelong treatment. However, there is limited knowledge about the lived experiences and psychosocial and mental health challenges faced by PHI adolescents in sub-Saharan Africa, where 80% of PHI adolescents reside. To address this gap, we adapted the socioecological model to investigate the challenges and lived experiences of PHI adolescents in rural coastal Kenya. Methods: Between October and November 2018, a sample of 40 participants (20 PHI adolescents and their 20 primary caregivers) participated in a qualitative study using an H-assessment data collection approach for adolescents and focus group discussions with caregivers. Data analysis was conducted using a framework approach on NVIVO 11 software. Results: PHI adolescents from this setting experience many challenges across various levels of the ecosystem. At the individual level, challenges include living in denial, HIV status disclosure, antiretroviral adherence, internalized stigma, and mental health issues. Within the family, challenges such as parental loss, insufficient care from parents, and unacceptance lead to threats of harm. In the broader community, key challenges such as gossip, unsupportive community members, long waiting times at the health facility, isolation, rejection, and an unresponsive school system fail to address the needs of PHI adolescents. Finally, HIV-related stigma and discrimination manifested across different levels of the socioecological framework. To cope with these challenges, PHI adolescents often rely on privacy and social support from their families. Conclusion: The findings underscore the need to develop and implement multi-level adolescent-friendly interventions to address PHI adolescent challenges and guide future investment in adolescent's health. Furthermore, there is a need to address internalized and interpersonal stigmas through individual-level interventions that promote resilience and the active involvement of adolescents, their caregivers, peers, and teachers who are their social support system

Family medicine · Focus group · Kenya · Mental health · Photovoice · Poverty · Psychiatry · Psychosocial · Qualitative research · Social stigma · Adolescent Sexual and Reproductive Health · HIV/AIDS Research and Interventions · Medicine · Poverty, Education, and Child Welfare · Psychology

  • The association between self-acceptance, emotion regulation, and treatment adherence self-efficacy among adolescents with HIV in Liangshan prefecture, China

    Open Access•Dan Tan, Wenxi Zhong et al.•BMC Public Health•2025

  • Global prevalence and biopsychosocial correlates of psychological distress among people living with HIV

    Open Access•Qiaoting Xue, Qilian He et al.•Frontiers in Public Health•2026

  • Drivers of disengagement from care during the first six months on antiretroviral therapy for HIV in South Africa

    Open Access•Mhairi Maskew, Nyasha Mutanda et al.•PLOS Global Public Health•2025

  • “It’s a very, very thorny issue … ”

    Open Access•Agnes Ronan, Lesley Gittings et al.•AIDS Care•2026

  • Social cognitive development during adolescence

    Open Access•Suparna Choudhury, Sarah‐jayne Blakemore et al.•Social Cognitive and Affective…•2006

  • The Adolescent Brain

    Open Access•B J Casey, Rebecca M Jones et al.•Annals of the New York Academy of…•2008

  • Perinatally acquired HIV infection in adolescents from sub-Saharan Africa

    Open Access•Elizabeth D Lowenthal, Sabrina Bakeera-Kitaka et al.•The Lancet Infectious Diseases•2014

  • Adolescence

    Open Access•Susan M Sawyer, Rima Afifi et al.•The Lancet•2012

  • An Ecological Perspective on Health Promotion Programs

    Open Access•Kenneth R McLeroy, Daniel L Bibeau et al.•Health Education Quarterly•1988

  • Translating Social Ecological Theory into Guidelines for Community Health Promotion

    Open Access•Daniel Stokols•American Journal of Health…•1996

  • Using the framework method for the analysis of qualitative data in multi-disciplinary health research

    Open Access•Nicola Gale, Nicola K Gale et al.•BMC Medical Research Methodology•2013

  • Consolidated criteria for reporting qualitative research (Coreq)

    A Jaure, A Tong et al.•International Journal for Quality…•2007

  • A qualitative inquiry of experiences of HIV-related stigma and its effects among people living with HIV on treatment in rural Kilifi, Kenya

    Open Access•Stanley W Wanjala, Moses K Nyongesa et al.•Frontiers in Public Health•2023

  • Psychosocial challenges and protective influences for socio-emotional coping of HIV+ adolescents in South Africa

    Inge Petersen, Arvin Bhana et al.•AIDS Care•2010

  • Living as an adolescent with HIV in Zambia – lived experiences, sexual health and reproductive needs

    Ian Hodgson, Julia Ro et al.•AIDS Care•2012

  • Factors influencing social self-disclosure among adolescents living with HIV in Eastern Africa

    Open Access•Christiana Nöstlinger, Sabrina Bakeera-Kitaka et al.•AIDS Care•2015

  • Internalized HIV stigma, bullying, major depressive disorder, and high-risk suicidality among HIV-positive adolescents in rural Uganda

    Open Access•Scholastic Ashaba, Christine E Cooper-Vince et al.•Cambridge Prisms Global Mental…•2018

  • Accessing HIV treatment and care services in fishing communities around Lake Victoria in Uganda

    Christopher Tumwine, Peter Aggleton et al.•African Journal of AIDS Research•2019

  • Community beliefs, HIV stigma, and depression among adolescents living with HIV in rural Uganda

    Scholastic Ashaba, Christine E Cooper-Vince et al.•African Journal of AIDS Research•2019

  • Barriers to ART adherence among school students living with HIV in Kenya

    Edith Apondi, Juddy Wachira et al.•African Journal of AIDS Research•2021

  • How disclosure and antiretroviral therapy help HIV-infected adolescents in sub-Saharan Africa cope with stigma

    Vivian Midtbø, Violeth Shirima et al.•African Journal of AIDS Research•2012

  • Your status cannot hinder you”

    Open Access•Casey Phippen Adams, Casey Adams et al.•BMC Public Health•2022

  • Everyone has a secret they keep close to their hearts’

    Open Access•A Abubakar, Fons J R Van De Vijver et al.•BMC Public Health•2016

  • Psychosocial and mental health challenges faced by emerging adults living with HIV and support systems aiding their positive coping

    Open Access•Moses K Nyongesa, Carophine Nasambu et al.•BMC Public Health•2022

  • The Socioecological Model as a framework for exploring factors influencing childhood immunization uptake in Lagos state, Nigeria

    Open Access•Abisola Olaniyan, Chinwoke Isiguzo et al.•BMC Public Health•2021

  • A Social-Ecological Framework to Understand Barriers to HIV Clinic Attendance in Nakivale Refugee Settlement in Uganda

    Open Access•Kelli N O’laughlin, Kelsy E Greenwald et al.•AIDS and Behavior•2020

  • Thinking Too Much”

    Open Access•E L Backe, Edna N Bosire et al.•Culture Medicine and Psychiatry•2021

  • Are We There Yet? Data Saturation in Qualitative Research

    Open Access•Patricia Fusch, Lawrence Ness•Qualitative Report•2015

  • Responding to adolescents living with HIV in Zambia

    Open Access•Gitau Mburu, Mala Ram et al.•Children and Youth Services Review•2014

  • From policy to patient

    Open Access•Ian Litchfield, Katherine Perryman et al.•Social Science & Medicine•2021

  • How Many Interviews Are Enough

    Open Access•Greg Guest, Arwen Bunce et al.•CAM•2006

Citations per year4
Citation span2025 - 2026 (2)
Highly citedNo

Tools

Open DOIOpen Access
Ethnos_APP • Open Source Project • MIT License • Frontend v2.0.0 • Privacy and Cookies • API Documentation: api.ethnos.app/docs • API Source Code: GitHub • DOI: 10.5281/zenodo.17049435 • Frontend Source Code: GitHub • DOI: 10.5281/zenodo.17050053 • cruz.rio.br • Expectantes Misericordiae