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Development of a pain education resource for people with spinal cord injury

Bibliographic Data

ID22079615
AuthorsEva Widerström-Noga (0000-0003-0208-3658, University of Miami, corresponding author), Kim D Anderson (0000-0001-9252-161X, MetroHealth Medical Center), Kimberly D Anderson, Linda E Robayo (0000-0002-5188-3486, University of Miami), Salome Perez (Bruce W. Carter VA Medical Center), Alberto Martinez-Arizala, Alberto Martinez‐Arizala (University of Miami), Lindsey Calle-Coule (Bruce W. Carter VA Medical Center), Nicholas P Cherup (0000-0001-6181-3863, University of Miami), Gabriel E Fernandez (University of Miami)
Year2023
Volume11
Pages1197944-1197944
Publication date2023-07-24
Open AccessYes
TypeARTICLE
VenueFrontiers in Public Health (JOURNAL)
Journal identifiersISSN: 2296-2565 • E-ISSN: 2296-2565
PublisherFrontiers Media SA (PUBLISHER • CH)
DOI10.3389/fpubh.2023.1197944
PMID37554730
OpenAlexW4385198198
LanguageEN
Citations received1
References cited67

Many people with spinal cord injury (SCI) develop chronic pain, including neuropathic pain. Unfortunately, current treatments for this condition are often inadequate because SCI-associated neuropathic pain is complex and depends on various underlying mechanisms and contributing factors. Multimodal treatment strategies including but not limited to pharmacological treatments, physical rehabilitation, cognitive training, and pain education may be best suited to manage pain in this population. In this study, we developed an educational resource named the SeePain based on published pain literature, and direct stakeholder input, including people living with SCI and chronic pain, their significant others, and healthcare providers with expertise in SCI. The SeePain was then 1) systematically evaluated by stakeholders regarding its content, comprehensibility, and format using qualitative interviews and thematic analysis, and 2) modified based on their perspectives. The final resource is a comprehensive guide for people with SCI and their significant others or family members that is intended to increase health literacy and facilitate communication between SCI consumers and their healthcare providers. Future work will quantitatively validate the SeePain in a large SCI sample

Chronic pain · Health care · Neuropathic pain · Physical medicine and rehabilitation · Physical therapy · Population · Psychiatry · Qualitative research · Spinal cord · Spinal cord injury · Thematic analysis · Computer Science · Medicine · Nerve Injury and Rehabilitation · Nursing · Psychology · Spinal Cord Injury Research · Stroke Rehabilitation and Recovery · Rehabilitation

  • Perspectives of people with spinal cord injury on a pain education resource

    Open Access•Gabriel E Fernandez, Kim D Anderson et al.•Frontiers in Public Health•2024

  • Does Sample Size Matter in Qualitative Research?

    Bryan Marshall, Peter W Cardon et al.•Journal of Computer Information…•2013

  • The West Haven-Yale Multidimensional Pain Inventory (WHYMPI)

    Robert D Kerns, Dennis C Turk et al.•Pain•1985

  • Generalized expectancies for internal versus external control of reinforcement.

    Julian B Rotter•The Psychological Monographs•1966

  • Spinal cord injuries

    Open Access•Mary Eubanks Dunn, Michael Dunn•Social Science & Medicine•1982

Citations per year0.5
Citation span2024 - 2024 (1)
Highly citedNo

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Open DOIOpen Access
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