A Holy Mess of a Story
Maternal Reflections on Caregiving, Chaos, and Intellectual Disability
Bibliographic Data
| ID | 22112209 |
|---|---|
| Authors | Laura MacGregor (0000-0002-4216-5407, Wilfrid Laurier University, corresponding author) |
| Year | 2023 |
| Volume | 27 |
| Issue | 1 |
| Pages | 124-137 |
| Publication date | 2023-01-02 |
| Peer Reviewed | Yes |
| Open Access | No |
| Type | ARTICLE |
| Venue | Journal of Disability & Religion (JOURNAL) |
| Journal identifiers | ISSN: 2331-2521 • E-ISSN: 2331-253X |
| Publisher | Informa UK Limited (PUBLISHER • GB) |
| DOI | 10.1080/23312521.2021.1932688 |
| OpenAlex | W3167260957 |
| Language | EN |
| References cited | 24 |
Drawing on Frank’s illness narratives, the mother of a profoundly disabled son argues that Vanier and Nouwen’s descriptions of caregiving conform to the socially mandated quest narrative requiring stories of triumph. Their stories of spiritual growth have become a master text colonizing the experiences of mothers caring for children with intellectual disabilities, particularly among faith communities. Rather than a journey of spiritual growth, research indicates that the lives of mothers often resemble a chaos narrative of spiritual confusion, paradoxically fused with joy. Providing effective spiritual care requires that faith communities honor anti-narratives of caregiving chaos
Alternative medicine · Art · Confusion · Developmental psychology · Faith · Honor · Intellectual disability · Literature · Narrative · Narrative therapy · Psychoanalysis · Sociology · Spirituality · Theology · Family and Disability Support Research · Family Support in Illness · Gender Studies · Grief, Bereavement, and Mental Health · Medicine · Philosophy · Psychology
Care, Gender, and Justice
Handbook of Religion and Health
The Paradox of Hope
Existentialism Is a Humanism
Learning from My Daughter
The health of caregivers for children with disabilities
The Economic Costs of Childhood Disability
Economic Costs of Caring for Children with Disabilities in Canada
Care and Equality
This Is a Spiritual Experience
Religion, Relationships, and Responsible Fathering in Latter-Day Saint Families of Children with Special Needs
| Citation velocity | historical |
|---|---|
| Highly cited | No |