Childhood Worldings of Brittle Bone Disease
A Portrait in 5 Triptych Research Poem
Bibliographic Data
| ID | 22124221 |
|---|---|
| Authors | Brenda Cleary, Brenda L Cleary (McGill University), Franco A Carnevale (0000-0001-7255-9979, McGill University), Argerie Tsimicalis (0000-0002-5963-9728, McGill University) |
| Year | 2023 |
| Pages | 51-71 |
| Publication date | 2023-06-09 |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Journal of Childhood Studies (JOURNAL) |
| Journal identifiers | ISSN: 2371-4107 • E-ISSN: 2371-4115 |
| Publisher | University of Victoria Libraries (PUBLISHER) |
| DOI | 10.18357/jcs482202321090 |
| OpenAlex | W4380301185 |
| Language | EN |
| References cited | 3 |
This paper offers a collection of found poems offering insights into representative worlds of children living with dis/abilities, chronic hospitalizations, and the ethical dilemmas surrounding their perioperative care. The collection represents the sum tota poetic crystallization of a multiyear ethnography focused on the ethical experiences of the childhood osteogenesis imperfecta community as encountered in a specialized North American pediatric OI clinic. The collection deliberately bridges multiple separate (yet deeply connected) worlds of children, clinicians, and family members to reveal their interdependence and yet preserve each individual’s distinct viewpoints
Art · Art history · Ethnography · Literature · Poetry · Portrait · Sociology · Viewpoints · Visual arts · Anthropology · Child and Adolescent Health · Childhood Cancer Survivors' Quality of Life · Ethics and Legal Issues in Pediatric Healthcare
| Highly cited | No |
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