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Social Profile of Mothers Raising Children With Disabilities

A Survey in Rural and Small-Town Russia

Bibliographic Data

ID22201588
AuthorsElmira K Naberushkina (0000-0001-7495-231X, State University of Management), Olga E Fomina (0000-0003-0959-4557, Vladimir State University), Anna D Levshits (0000-0001-9266-3124, Peoples' Friendship University of Russia), Ekaterina A Knyazkova (0000-0001-7313-8754, Russian Academy of Sciences)
Year2024
Volume8
Issue2
Pages313-333
Publication date2024-07-19
Open AccessYes
TypeARTICLE
VenueChanging Societies and Personalities (JOURNAL)
Journal identifiersISSN: 2587-6104 • E-ISSN: 2587-8964
PublisherUral Federal University (PUBLISHER • RU)
DOI10.15826/csp.2024.8.2.276
OpenAlexW4400897056
LanguageEN
Citations received1
References cited13

Like any other family, families with disabled children have their share of joys and sorrows. However, social attitudes and prejudices towards disabilities often pose more significant challenges than the child’s condition itself. Discrimination against mothers raising disabled children comes to the fore in social interactions, where the child’s disability can unfairly define the mother, subjecting her to stigmatization. The ability of parents, particularly mothers, to mobilize resources is crucial for the family’s well-being, as they often bear the primary responsibility for child care. In Russia, one in three disabled children is raised by only one parent. Social services for families with disabled children are evolving in response to families’ needs, but there is currently no unified system to verify their effectiveness. Our study was conducted in 2024 in Vladimir and Nizhny Novgorod Oblasts and explored socio-psychological distress in families with disabled children. Through semi-structured interviews with 98 women whose children attend social rehabilitation institutions, we gained insights into mothers’ experiences, including their life satisfaction, access to state and social support, as well as daily stigmatization. These findings provide a comprehensive understanding of the challenges faced by women raising disabled children, highlighting areas of social disadvantage and stigma in provincial contexts

Developmental psychology · Disabled people · Disadvantage · Distress · Family medicine · Political science · Psychiatry · Social model of disability · Social stigma · Clinical Psychology · Family and Disability Support Research · Medicine · Psychology

  • Modern Russian and international paradigms of social work and rehabilitation for men with disabilities, including participants of the special military operation

    Open Access•Tamara К Rostovskaya, Olga E Fomina et al.•Ekologiya Cheloveka (Human Ecology•2025

  • Assessment of the social well-being of families in Russian regions

    Open Access•T K Rostovskaya, Tamara Rostovskayа et al.•RUDN Journal of Sociology•2021

  • Restricted participation

    Open Access•Esther Breffka, Catherine Jagoe et al.•African Journal of Disability•2023

  • Developing a model of disability that focuses on the actions of disabled people

    Jonathan M Levitt•Disability & Society•2017

  • Experiences of higher education for students with chronic illnesses

    Open Access•Pippa R Hamilton, Julie A Hulme et al.•Disability & Society•2021

  • Assessing disability rights in four Asian countries

    Open Access•Y C Chou, Toshiyuki Uwano et al.•Political Geography•2024

Citations per year1
Citation span2025 - 2025 (1)
Highly citedNo

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