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The fragile spirituality of parents whose children died in the pediatric intensive care unit

Bibliographic Data

ID22310868
AuthorsJeannette L Falkenburg (Intensive Care Unit and Department of Pediatric Surgery (JLF, DT, MvD), Erasmus University Medical Center – Sophia Children’s Hospital, Rotterdam, the Netherlands, corresponding author), Monique van Dijk (0000-0002-9856-0318, Intensive Care Unit and Department of Pediatric Surgery (JLF, DT, MvD), Erasmus University Medical Center – Sophia Children’s Hospital, Rotterdam, the Netherlands), Dick Tibboel (0000-0003-4331-5398, Intensive Care Unit and Department of Pediatric Surgery (JLF, DT, MvD), Erasmus University Medical Center – Sophia Children’s Hospital, Rotterdam, the Netherlands), R R Ganzevoort (0000-0003-3395-1497, Vrije Universiteit Amsterdam)
Year2020
Volume26
Issue3
Pages117-130
Publication date2020-07-02
Open AccessYes
TypeARTICLE
VenueJournal of Health Care Chaplaincy (JOURNAL)
Journal identifiersISSN: 0885-4726 • E-ISSN: 1528-6916
PublisherInforma UK Limited (PUBLISHER • GB)
DOI10.1080/08854726.2019.1670538
PMID31583971
OpenAlexW2977891418
LanguageEN
Citations received1
References cited27

Spiritual care is recognized as a relevant dimension of health care. In the context of pediatric palliative end-of-life care, spirituality entails more than adhering to a spiritual worldview or religion. Interviews with parents whose critically ill child died in the pediatric intensive care unit revealed features of a spirituality that is fragmentary and full of contradictions. This type of spirituality, which we refer to as fragile, speaks of parents' connectedness with the deceased child and the hope of some kind of reuniting after one's own death. Acknowledging that fragments of spirituality can be part of parents' experiences in their child's end-of-life stage can be a meaningful contribution to compassionate care

Alternative medicine · Intensive care unit · Palliative care · Pastoral care · Pediatric intensive care unit · Psychiatry · Psychotherapist · Social connectedness · Spiritual care · Spirituality · Grief, Bereavement, and Mental Health · Medicine · Nursing · Palliative Care and End-of-Life Issues · Psychology · Religion, Spirituality, and Psychology

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Citations per year1
Citation span2025 - 2025 (1)
Highly citedNo

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