Repertoires of responsibility for diabetes management by adults with intellectual disabilities and those who support them

Dados Bibliográficos

ID2249156
AutoresLorna Rouse (0000-0002-7237-5173, Faculty of Health and Social Care The Open University UK, autor correspondente), W M L Finlay (0000-0002-9351-0151, Department of Psychology Anglia Ruskin University UK)
Ano2016
Volume38
Fascículo8
Páginas1243-1257
Data de publicação2016-11-01
Peer ReviewedSim
Open AccessSim
TipoARTICLE
PeriódicoSociology of Health & Illness (JOURNAL)
Identificadores do periódicoISSN: 0141-9889 • E-ISSN: 1467-9566
EditoraWiley (PUBLISHER • GB)
DOI10.1111/1467-9566.12454
PMID27545852
OpenAlexW2518344172
IdiomaEN
Referências citadas40

The limited existing research on diabetes management and intellectual disabilities (ID) highlights the need for further exploration of the concept of responsibility. This study explored repertoires of responsibility in accounts of managing diabetes for adults withID. Fourteen semi-structured interviews were conducted in theUKwith seven adults with mild/moderateIDand type 1 or 2 diabetes and seven people who they nominated as supporting their diabetes management. A discursive psychological analysis found that interpretative repertoires relating to competence, independence and accountability were drawn on to construct multiple and sometimes conflicting versions of responsibility. Within these repertoires people withIDwere positioned in conflicting ways; as competent, personally responsible, and entitled to independence and choice, but as also lacking competence, dependent on others and incapable of overall accountability. People withIDoften took up empowering positions defending against an incompetent identity. Supporters built accounts which negotiated dilemmatic repertoires on the dual responsibilities of empowering adults withIDto self-manage and managing risk to support good and safe care. The implications of available discursive resources and the ways in which they are mobilised are considered

Diabetes management · Diabetes mellitus · Intellectual disability · Psychiatry · Type 2 diabetes · Chronic Disease Management Strategies · Disability Rights and Representation · Healthcare innovation and challenges · Medicine · Psychology · Gerontology