Constructing the detecting stage
Social processes and the diagnostic journey of early onset Parkinson's disease
Bibliographic Data
| ID | 2250215 |
|---|---|
| Authors | Maria Valasaki (0000-0002-8786-9731, School of Primary Care University of Exeter Medical School Exeter UK, corresponding author) |
| Year | 2023 |
| Volume | 45 |
| Issue | 4 |
| Pages | 872-889 |
| Publication date | 2023-05-01 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Sociology of Health & Illness (JOURNAL) |
| Journal identifiers | ISSN: 0141-9889 • E-ISSN: 1467-9566 |
| Publisher | Wiley (PUBLISHER • GB) |
| DOI | 10.1111/1467-9566.13622 |
| PMID | 36762824 |
| OpenAlex | W4319815213 |
| Language | EN |
| References cited | 50 |
Parkinson's is a neurodegenerative disorder that mostly affects people over the age of 65; however, a significant number (10%) of the diagnosed cases are under the age of 50 (Young Onset Parkinson's disease). It has multiple symptoms; it is difficult to diagnose and its progression cannot be intercepted. This article focuses on the experience of the diagnostic process as narrated by individuals who were under the age of 50 when diagnosed. Analysis of in-depth interviews with 17 individuals with Parkinson's disease inductively reveals a 'detecting stage', a period during which they visit different doctors, undertake many examinations and experience bodily symptoms with impacts on their mental health. The diagnostic process, which usually lasts over 2 years, often leads to misdiagnosis and or late diagnosis (a) on account of the individual's young age and social meanings attached to it, usually by doctors, whose discourse appears to be rather psychologised and (b) is perceived as disruptive to individuals' biographies. Due to the tendency to over-attribute bodily symptoms to psychological problems, accurate diagnosis is experienced as redemption
Developmental psychology · Disease · Parkinson's disease · Pathology · Psychiatry · Stage (stratigraphy · Clinical Psychology · Genetic Neurodegenerative Diseases · Medicine · Neurological disorders and treatments · Parkinson's Disease Mechanisms and Treatments · Psychology · Pediatrics
Dopamine, learning and motivation
Parkinsonism
Putting a Name to It
Possible selves
Sociology of diagnosis
Age, Dementia, and Diagnostic Candidacy
Sample Size in Qualitative Interview Studies
The Birth of the Clinic
Putting a Name to it
Troubling biographical disruption
Chronic illness as biographical disruption
Coherence and incoherence
Young onset Parkinson's disease
Searching for diagnostic certainty, governing risk
What is in a name? Autonomic imbalance and medically unexplained symptoms in Taiwan
The cycle of uncertainty
To what extent does diagnosis matter? Dementia diagnosis, trouble interpretation and caregiving network dynamics
Breast cancer diagnosis
| Citation velocity | historical |
|---|---|
| Highly cited | No |