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Development of a health advocacy intervention for adults with intellectual disability and their general practitioners

Bibliographic Data

ID22945107
AuthorsN Lennox (0000-0002-9534-4185)
Year2004
Volume19
Issue2
Pages167-175
Publication date2004-06-01
Peer ReviewedYes
Open AccessYes
TypeARTICLE
VenueHealth Promotion International (JOURNAL)
Journal identifiersISSN: 0957-4824 • E-ISSN: 1460-2245
PublisherOxford University Press (OUP) (PUBLISHER)
DOI10.1093/heapro/dah204
PMID15128708
OpenAlexW2171376841
LanguageEN
Citations received8
References cited1

Two per cent of people in Australia have intellectual disability and the adults in this population often have poor health status. This poor health can be partly attributed to communication difficulties encountered by people with intellectual disability and also health professionals in consultation settings. The design and development processes of an educational intervention to improve communication between patients, general practitioners (GPs) and also advocates in a population of adults with intellectual disability are described. The design process was collaborative and involved adults with intellectual disability, GPs, parents, support workers and other professionals. It was a nine-step development process and led to the final communication tool package, the ask (advocacy skills kit) 5-year health diary and educational session. As a result of the collaborative design and development processes, this diary included qualities not found in most other medical record keeping systems: visual appeal, advice on how to be a health advocate, utility for a range of users, privacy, portability and sufficient capacity to record personal patient information which enhanced communication between doctor, patient and advocate. It is proving to be very popular. Clear implications were found for applying established criteria and incorporating the needs of users in the design of educational interventions in the intellectually disabled population. Health promotion tools aiming to improve the current poor health status of adults with intellectual disability should be developed further.

Environmental health · Health promotion · Intellectual disability · Intervention (counseling) · Medical education · Population · Psychiatry · Psychological intervention · Public health · Chronic Disease Management Strategies · Down syndrome and intellectual disability research · Healthcare innovation and challenges · Medicine · Nursing · Psychology

  • Ask

    Open Access•Nicholas Lennox, Robert Ware et al.•BMC Public Health•2012

  • The Impact of a School-Based Weight Management Program Involving Parents via mHealth for Overweight and Obese Children and Adolescents with Intellectual Disability

    Open Access•Regina Lee, Cynthia Leung et al.•International Journal of…•2017

  • Organizational Health Literacy in Facilities for People with Disabilities

    Open Access•Katharina Rathmann, Theres Vockert et al.•International Journal of…•2020

  • Access, understanding, promotion and maintenance of good health

    Open Access•Lisa T Dam, Petra Heidler et al.•Frontiers in Public Health•2022

  • Bridging the gap in healthcare

    Open Access•Lisa T Dam, Petra Heidler et al.•Frontiers in Public Health•2023

  • Development of an intervention to increase health service utilisation in ex-prisoners

    Open Access•Stuart A Kinner, Kate van Dooren et al.•Health & Justice•2014

  • Distributed Health Literacy Among People With Intellectual Disability, Their Supporters and Healthcare Professionals

    Open Access•Maryann Barrington, Karen R Fisher et al.•Health Expectations•2026

  • Critical health literacy health promotion and people with intellectual disabilities

    Deborah Chinn•Asia-Pacific Journal of Health…•2014

  • A process evaluation model for patient education programs for pregnant smokers

    Richard A Windsor•Tobacco Control•2000

Unique citing works8
Citations per year0,57
Citation span2012 - 2026 (15)
Citation velocitycurrent
Highly citedNo
Citation typesNeutral: 8

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