Skip to main content

ETHNOS_APP

Home • Search • Journals • List 0

Informal and Formal Social Support and Caregiver Burden

The Ages Caregiver Survey

Bibliographic Data

ID23336271
AuthorsKoichiro Shiba (0000-0001-7956-6485, The University of Tokyo), Naoki Kondo (0000-0002-6425-6844, The University of Tokyo), Kyoichi Kondo (0000-0003-0076-816X, Chiba University), Katsunori Kondo (Chiba University)
Year2016
Volume26
Issue12
Pages622-628
Publication date2016-01-01
Peer ReviewedYes
Open AccessYes
TypeARTICLE
VenueJournal of Epidemiology (JOURNAL)
Journal identifiersISSN: 0917-5040 • E-ISSN: 1349-9092
PublisherJapan Epidemiological Association (PUBLISHER • JP)
DOI10.2188/jea.je20150263
PMID27180934
OpenAlexW2357465843
LanguageEN
Citations received54
References cited23

BACKGROUND: We examined the associations of informal (eg, family members and friends) and formal (eg, physician and visiting nurses) social support with caregiver's burden in long-term care and the relationship between the number of available sources of social support and caregiver burden. METHODS: We conducted a mail-in survey in 2003 and used data of 2998 main caregivers of frail older adults in Aichi, Japan. We used a validated scale to assess caregiver burden. RESULTS: Multiple linear regression demonstrated that, after controlling for caregivers' sociodemographic and other characteristics, informal social support was significantly associated with lower caregiver burden (β = -1.59, P < 0.0001), while formal support was not (β = -0.30, P = 0.39). Evaluating the associations by specific sources of social support, informal social supports from the caregiver's family living together (β = -0.71, P < 0.0001) and from relatives (β = -0.61, P = 0.001) were associated with lower caregiver burden, whereas formal social support was associated with lower caregiver burden only if it was from family physicians (β = -0.56, P = 0.001). Compared to caregivers without informal support, those who had one support (β = -1.62, P < 0.0001) and two or more supports (β = -1.55, P < 0.0001) had significantly lower burden. This association was not observed for formal support. CONCLUSIONS: Social support from intimate social relationships may positively affect caregivers' psychological wellbeing independent of the receipt of formal social support, resulting in less burden.

Caregiver burden · Dementia · Disease · Family medicine · Social support · Aging, Health, and Disability · Health disparities and outcomes · Intergenerational Family Dynamics and Caregiving · Internal Medicine · Medicine · Gerontology

  • Should a Caregiver's QoL Be Considered in Decisions About Whether a Patient Has an Experimental Double-Hand Transplant

    Open Access•Miguel I Dorante, Elaine Devine et al.•The AMA Journal of Ethic•2019

  • Burden and satisfaction with social support in families with a history of problematic substance use or dementia – a comparison

    Open Access•Renate Soellner, Christine Hofheinz•BMC Psychology•2024

  • Association between Role Overload and Sleep Disturbance among Dementia Caregivers

    Open Access•Jiaming Liang, María P Aranda et al.•Journal of Aging and Health•2020

  • Patterns of Caregiving Among Older Adults With and Without Dementia

    Open Access•Talha Ali, Gail J McAvay et al.•The Journals of Gerontology…•2021

  • Association Between Caregiver Depression and Elder Mistreatment—Examining the Moderating Effect of Care Recipient Neuropsychiatric Symptoms and Caregiver-Perceived Burden

    Open Access•Boye Fang, Huiying Liu et al.•The Journals of Gerontology…•2021

  • Gender and Health Among Informally Employed Workers

    Open Access•Yong Zhan, X Zhan et al.•Health & Social Care in the…•2025

  • Social Isolation Among Spousal and Adult-Child Caregivers

    Open Access•Lun Li, Andrew V Wister et al.•The Journals of Gerontology…•2020

  • Support for Family Caregivers

    Open Access•Joseph Svec, Natasha Nemmers et al.•The Journals of Gerontology…•2024

  • Social contextual factors, social support and accessibility of social services in the health and life satisfaction of family caregivers in Hong Kong

    Open Access•Song Guo, Shaolingyun Guo et al.•BMC Public Health•2025

  • Instrumental Support

    Open Access•Catherine K Arnold, Sigmund P Harris et al.•Journal of Developmental and…•2024

  • Relationship between Burden, Quality of Life and Difficulties of Informal Primary Caregivers in the Context of the Covid-19 Pandemic

    Open Access•Tania Gaspar, Marta Raimundo et al.•International Journal of…•2023

  • The Influence of Family Caregivers’ Experience of Interprofessional Care on Their Participation in Health Checkups as Preventive Health Behavior in Japan—A Cross-Sectional Analysis

    Open Access•Gen Nakayama, Shoichi Masumoto et al.•International Journal of…•2020

  • Relationship of Perceived Social Support with Mental Health in Older Caregivers

    Open Access•Laura Muñoz Bermejo, José Carmelo Adsuar et al.•International Journal of…•2020

  • Reducing the Physical Burden of Older Persons’ Household Caregivers

    Open Access•Ruttana Phetsitong, Patama Vapattanawong•International Journal of…•2022

  • Exploring the experience of informal caregivers of dependent elderly people with the well-being valuation method

    Open Access•Tongzhou Lyu, Suwei Yuan et al.•Frontiers in Psychiatry•2025

  • Changes in Caregiver Personal Support Networks

    Open Access•María Nieves Rodríguez-Madrid, María Del Río-Lozano et al.•International Journal of…•2021

  • Untangling the role of social relationships in the association between caregiver burden and caregiver health

    Open Access•Hannah Tough, Martin W G Brinkhof et al.•BMC Public Health•2022

  • Broadening the scope of social support, coping skills and resilience among caretakers of children with disabilities in Uganda

    Open Access•Mariam Namasaba, Neo Kazembe et al.•BMC Public Health•2022

  • The dynamics of formal and informal actors and their perceptions in peri-urban land conflict of Mekelle City, Ethiopia

    Open Access•Negash Araya, Birhanu Girma•Urban, Planning and Transport…•2026

  • Informal caregivers in Germany – who are they and which risks and resources do they have

    Open Access•Judith Fuchs, Beate Gaertner et al.•Frontiers in Public Health•2023

  • Place-based, intersectional variation in caregiving patterns and health outcomes among informal caregivers in the United States

    Open Access•Stuart A Cohen, Steven A Cohen et al.•Frontiers in Public Health•2024

  • Complementarity of formal and informal actors and their networks in support of vulnerable populations in informal settlements

    Open Access•Ivy Chumo, Caroline Kabaria et al.•Frontiers in Public Health•2023

  • An investigation of what protective individual- and community-level factors are associated with life satisfaction in middle-aged and older family carers in Ireland

    Open Access•Christine McGarrigle, Christine A McGarrigle et al.•Frontiers in Public Health•2023

  • Perceived Social Support Mediating Caregiver Burden and Mental Health in Schizophrenia Caregivers

    Open Access•Yuxin Hao, Qiongting Zhang et al.•Health Education & Behavior•2026

  • Hispanic Survivors and Caregivers of Human Papillomavirus–Associated Cancers

    Open Access•Alondra Avila, Jacquelin I Cordero et al.•Health Education & Behavior•2023

  • Support Seeking Tactics Used by Family Caregivers of Relatives With Dementia

    Open Access•Karen E Schlag, Zhengyu Zhang•The Family Journal•2024

  • Parental caregivers’ use of support networks for adults with autism by educational status

    Christina N Marsack‐Topolewski•Journal of Family Social Work•2021

  • Stressor, Coping, Resources and Potentially Harmful Behaviors by Family Caregivers of Cognitively Impaired Older Adults in China

    Open Access•Xiang Gao, Yaofeng Chen et al.•Journal of Family Violence•2025

  • Les configurations d’aide répondent-elles aux besoins de soutien des aidants principaux

    Sarah Marie Nogues, Diane-Gabrielle Tremblay et al.•Gérontologie et société•2021

  • Association Between Community Elderly Care Services and the Physical and Emotional Burden of Family Caregivers of Older Adults

    Open Access•Xiuwen Gao, Yong Tang•The International Journal of…•2024

  • Healthcare Hardship of Adult Children Taking Care of Aging Parents

    Open Access•Mengya Wang•The International Journal of…•2025

  • Perceived benefit or burden? How positive and negative spiritual/religious coping impacts family caregivers of people with dementia

    Edward Polson, Dennis R Myers et al.•Journal of Religion, Spirituality…•2024

  • Social Support via WeChat? Explorations of Chinese Rural–Urban Women’s Happiness

    Open Access•Linxin Wang•Social Sciences•2025

  • Resilience as a protective factor against elder abuse by family caregivers

    Open Access•Elsie Yan, Haze K L Ng et al.•The Journal of Adult Protection•2022

  • I know they are not trained in dementia’

    Open Access•Meg Polacsek, Anita Goh et al.•Health & Social Care in the…•2019

  • Factors associated with caregiver burden among adult (19–64 years) informal caregivers – An analysis from Dutch Municipal Health Service data

    Open Access•Emma Koopman, Monique Heemskerk et al.•Health & Social Care in the…•2020

  • Supporting an informal care group – Social contacts and communication as important aspects in the psychosocial well‐being of informal caregivers of older patients in Belgium

    Open Access•Leontien Jansen, Tine De Burghgraeve et al.•Health & Social Care in the…•2021

  • Homelessness and Intimate Partner Violence

    Open Access•Marissa Rakus, Jill A Singleton-Jackson et al.•Affilia•2024

  • Caring with

    Open Access•Tess Osborne, Thomas A Lowe et al.•Wellbeing Space and Society•2025

  • Caregiving and Care Receiving Experiences Among Older Chinese Immigrants and Their Home Health Aide

    Open Access•Kyeongra Yang, Ying‐Yu Chao et al.•Journal of Transcultural Nursing•2022

  • Effects of Disability Severity on the Family Burden of Home-Dwelling Uygur and Kazakh Aged in Rural Western China

    Open Access•Xueting Tang, Shuhua Zhao et al.•Journal of Transcultural Nursing•2022

  • Loneliness and social connections

    Varalakshmi Manchana•Journal of Human Behavior in the…•2025

  • Revealing the power of informal social support

    Open Access•Guanghao Wu, Jiajia Li et al.•International Migration•2024

  • O suporte social como fator de proteção para as mães de crianças com Síndrome da Zika Congênita

    Open Access•Tiago Jessé Souza Lima, Luana Elayne Cunha De Souza•Ciência & Saúde Coletiva•2021

  • Cuidadores formais de idosos dependentes no domicílio

    Open Access•Maria Do Livramento Fortes Figueiredo, Denise Machado Duran Gutierrez et al.•Ciência & Saúde Coletiva•2021

  • Variations in perceived social support among family caregivers from diverse cultural backgrounds

    Open Access•Rafat Hussain, Danish Ahmad et al.•Ethnicity and Health•2026

  • Support for family caregivers

    Open Access•Jasneet Parmar, Sharon Anderson et al.•Health & Social Care in the…•2020

  • Cultural factors associated with burden in unpaid caregivers of older adults

    Open Access•Madson Alan Maximiano‐Barreto, Ludmyla Caroline de Souza Alves et al.•Health & Social Care in the…•2022

  • Caring hearts, weighted shoulders

    Open Access•E Katz, Eran Bar-Kalifa et al.•Journal of Social and Personal…•2025

  • An early social support network analysis of men facing reentry

    Open Access•Raven Simonds•Journal of Criminal Justice•2024

  • Interpersonal variables and caregiving partners' burden in cardiac illness

    Open Access•E Katz, Eran Bar-Kalifa et al.•Journal of Social and Personal…•2023

  • The Experiences of Virtual Support for Grief and Bereavement

    Open Access•Andrea Crowley, Michael Kirst et al.•Illness Crisis & Loss•2025

  • Older family caregivers and health professionals of adults with intellectual disabilities

    Open Access•Michela Saretta, Tamara Alhambra-Borrás et al.•Social Science & Medicine•2025

  • Patterns of stress and support in social support networks of in-home hospice cancer family caregivers

    Open Access•Jia-Wen Guo, Maija Reblin et al.•Journal of Social and Personal…•2021

  • Caregiving as a Risk Factor for Mortality

    Richard Schulz, Scott R Beach•JAMA•1999

  • Caregiver Burden

    Ronald D Adelman, Lyubov L Tmanova et al.•JAMA•2014

  • Differences between caregivers and noncaregivers in psychological health and physical health

    Martin Pinquart, Sheiva Sorensen•Psychology and Aging•2003

  • Psychiatric and Physical Morbidity Effects of Dementia Caregiving

    R Schulz, Alison T O'Brien et al.•The Gerontologist•1995

  • Population ageing and wellbeing

    Open Access•Nanako Tamiya, Harkuo Noguchi et al.•The Lancet•2011

  • Subjective Burden of Husbands and Wives as Caregivers

    Steven H Zarit, Peter A Todd et al.•The Gerontologist•1986

  • Social Relationships and Health

    Open Access•James S House, Karl R Landis et al.•Science•1988

  • Social Ties and Mental Health

    Ichiro Kawachi•Journal of Urban Health•2001

  • Social Support and Depressed Mood

    Nan Lin, Xiaolan Ye et al.•Journal of Health and Social…•1999

  • Mechanisms Linking Social Ties and Support to Physical and Mental Health

    Open Access•P A Thoits•Journal of Health and Social…•2011

Unique citing works54
Citations per year7,71
Citation span2019 - 2026 (8)
Citation velocitycurrent
Highly citedNo
Citation typesNeutral: 51

Tools

Open DOISci-HubOpen Access
Ethnos_APP • Open Source Project • MIT License • Frontend v2.0.0 • Privacy and Cookies • API Documentation: api.ethnos.app/docs • API Source Code: GitHub • DOI: 10.5281/zenodo.17049435 • Frontend Source Code: GitHub • DOI: 10.5281/zenodo.17050053 • cruz.rio.br • Expectantes Misericordiae