Dados Bibliográficos

AUTOR(ES) Danielle Groleau , Carmen G. Loiselle , Nancy Wong , Alicia Navarro de Souza , William D. Foulkes
AFILIAÇÃO(ÕES) McGill University Health Centre, Montreal General Hospital, School of Architecture and Urbanism, Federal University of Rio de Janeiro–FAU/UFRJ, R. Jornalista Orlando Dantas 62 apt. 403 , Rio de Janeiro, Cep. 22231-010, Brazil
ANO Não informado
TIPO Artigo
DOI 10.1177/1049732314528756
CITAÇÕES 2
ADICIONADO EM 2025-08-18

Resumo

We explored the experiences of Ashkenazi Jewish and French Canadian women and meanings attributed to their hereditary breast and ovarian cancer (HBOC) risk. We purposively sampled 40 BRCA1 or BRCA2 (BRCA) mutation carriers and conducted theoretically driven semistructured interviews. According to content analysis, participants from these two ethnocultural groups held divergent meanings associated with being a BRCA carrier and different views pertaining to the illness experience and risk awareness. All participants identified a genetic basis; however, the French Canadian women also expressed other causes. The French Canadian women reported not knowing other carriers in their social environment, whereas the Ashkenazi Jewish women emphasized a strong sense of community contributing to their ethnic risk awareness. Based on these findings, we suggest that French Canadian women could benefit from greater awareness of the HBOC genetic risk and that health care providers should consider ethnically related and individual-based experiences and meanings during counseling.

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