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Ready-to-Recruit" or "Ready-to-Consent" Populations? Informed Consent and the Limits of Subject Autonomy

Dados Bibliográficos

ID2385183
AutoresJill A Fisher (0000-0002-9487-1493, Arizona State University)
Ano2007
Volume13
Fascículo6
Páginas875-894
Data de publicação2007-09-01
Peer ReviewedSim
Open AccessSim
TipoARTICLE
PeriódicoQualitative Inquiry (JOURNAL)
Identificadores do periódicoISSN: 1077-8004 • E-ISSN: 1552-7565
EditoraSAGE Publications Inc (PUBLISHER)
DOI10.1177/1077800407304460
PMID21359125
PMCIDPMC3044324
OpenAlexW2084313708
IdiomaEN
Citações recebidas16
Referências citadas18

This article queries the pharmaceutical industry's concept of "ready-torecruit" populations by examining its recruitment strategies for clinical trials and the types of human subjects who participate in these drug studies. The argument is that the pharmaceutical industry has profited from a system composed of what can more aptly be characterized as ready-to-consent populations, meaning populations who do not have better alternatives than participation in clinical trials. Furthermore, through qualitative research, this article aims to highlight some of the limitations of current U.S. federal regulation and to show how these limits signal problems that are not normally discussed in the medical ethics literature about research on human subjects. It does this by examining the impotence of informed consent-both as a concept and as a practice-in light of recruitment strategies and the structural reasons motivating individuals to participate in clinical trials

Alternative medicine · Argument (complex analysis · Autonomy · Biobank · Bioinformatics · Clinical trial · Engineering ethics · Informed consent · Meaning (existential · Medical education · Pathology · Pharmaceutical industry · Political science · Psychiatry · Psychotherapist · Public relations · Qualitative research · Research ethics · Social science · Sociology · Subject (documents · Biomedical Ethics and Regulation · Ethics in Clinical Research · Law · Medicine · Pharmaceutical industry and healthcare · Psychology · Pharmacology

  • (Re)configuring research value

    Open Access•Olga Zvonareva, Nora Engel et al.•BioSocieties•2017

  • Standardising Patient Engagement in Drug Development

    Open Access•Claudia Egher, Olga Zvonareva•Science & Technology Studies•2024

  • This isn’t going to end well

    Open Access•Jill A Fisher, Marci D Cottingham•Public Understanding of Science•2017

  • Racing for Consent

    Skye A Miner•International Journal of Feminist…•2017

  • From people with dementia to people with data

    Open Access•Richard Milne•BioSocieties•2018

  • A Systematic Review of Barriers and Facilitators to Minority Research Participation Among African Americans, Latinos, Asian Americans, and Pacific Islanders

    Sheba George, Nelida Duran et al.•American Journal of Public Health•2014

  • Ethics and Epistemic Injustice in the Global South

    Open Access•Kirandeep Kaur, Ben Grama et al.•Journal of Human Rights Practice•2023

  • A Missing Piece in Clinical Trial Inspections in Latin America

    Open Access•Gabriela Minaya, Duilio Fuentes et al.•Journal of Empirical Research on…•2017

  • Somatic Surveillance

    Open Access•Torin Monahan, Tyler Wall•Surveillance & Society•2002

  • Risk and Emotion Among Healthy Volunteers in Clinical Trials

    Open Access•Marci D Cottingham, Jill A Fisher•Social Psychology Quarterly•2016

  • Challenging Assumptions About Minority Participation in US Clinical Research

    Jill A Fisher, Corey A Kalbaugh•American Journal of Public Health•2011

  • I'm still a hustler

    Open Access•Torin Monahan, Jill A Fisher•Economy and Society•2015

  • Ready for What

    Open Access•N F Brenman, Richard Milne•Science Technology & Human Values•2022

  • Practicing research ethics

    Open Access•Jill A Fisher•Social Science & Medicine•2008

  • Strategies of inclusion

    Open Access•Janet K Shim, Michael Bentz et al.•Social Science & Medicine•2022

  • Configuring the patient as clinical research subject in the UK national health service

    Open Access•Mary Adams, Christopher Mckevitt•Anthropology and Medicine•2015

  • Inclusion

    Steven Epstein•Inclusion•2007

  • Distrust, Race, and Research

    Giselle Corbie-Smith, Stephen B Thomas et al.•A.M.A. Archives of Internal…•2002

  • Lesser Harms

    Sydney A Halpern•Lesser Harms•2004

  • Ask Your Doctor About

    Joy V Fuqua•Cultural Studies•2002

  • The Contract Research Organization and the Commercialization of Scientific Research

    Open Access•Philip Mirowski, Robert Van Horn•Social Studies of Science•2005

  • The Rise of `Recruitmentology

    Open Access•Steven Epstein•Social Studies of Science•2008

  • From margins to center? The development and purpose of participatory research

    Open Access•Budd L Hall•The American Sociologist•1992

  • Under the shadow of Tuskegee

    Vanessa Northington Gamble•American Journal of Public Health•1997

  • Bodily Differences and Collective Identities

    Open Access•Epstein, Steven Epstein•Body & Society•2004

  • Co-ordinating 'ethical' clinical trials

    Open Access•Jill A Fisher•Sociology of Health & Illness•2006

  • Empty ethics

    Open Access•Owen Corrigan, Oonagh Corrigan•Sociology of Health & Illness•2003

Obras citantes distintas16
Citações por ano0,67
Intervalo de citações2002 - 2024 (23)
Velocidade de citaçãorecent
Altamente citadoNão
Tipos de citaçãoNeutras: 15
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