Skip to main content

ETHNOS_APP

Home • Search • Journals • List 0

Gray Zone Identity

An Autoethnographic Journey of Chronic Illness, Diagnostic Uncertainty, and Autoimmunity

Bibliographic Data

ID2387232
AuthorsNicole Defenbaugh (0000-0002-7249-5415, University of Health Sciences & Pharmacy in St. Louis, MO, USA)
Year2024
Volume31
Issue8-9
Pages779-790
Publication date2024-10-08
Peer ReviewedYes
Open AccessYes
TypeARTICLE
VenueQualitative Inquiry (JOURNAL)
Journal identifiersISSN: 1077-8004 • E-ISSN: 1552-7565
PublisherSAGE Publications Inc (PUBLISHER)
DOI10.1177/10778004241282298
OpenAlexW4403258212
LanguageEN
Citations received1
References cited35

The author explores what it means to live in a liminal space of medical uncertainty as a person with an autoimmune disease. Autoethnography enables the author to examine the emotional, cognitive, and physical response to being told that her ill body and identity exist in a clinical gray zone. The author coins the term "gray zone identity" to capture the uncertainty and anxiety that accompanied years of symptoms without a diagnosis. Traveling in and out of health care facilities in search of answers, the author learns that not all bodies can be clinically explained by medical language or biomedical tests. It is in the liminal space of diagnostic uncertainty where the author endeavors to understand how to embrace her gray zone identity

Aesthetics · Anxiety · Autoethnography · Epistemology · Gray (unit · Identity (music · Liminality · Psychiatry · Psychoanalysis · Sociology · Anthropology · Clinical Reasoning and Diagnostic Skills · Empathy and Medical Education · Gender Studies · Medicine · Mental Health and Psychiatry · Philosophy · Psychology · Social Psychology

  • Sounds like cancer

    Helen Anahita Wilson•Medical Humanities•2026

  • Evocative Autoethnography

    A P Bochner, Arthur Bochner et al.•Evocative Autoethnography•2016

  • The anxiety of not knowing

    Open Access•Livia Levine, A Kay et al.•Current Psychology•2023

  • The Ontology of Oncology

    Jay Baglia•Health Communication•2023

  • Prenatal Care Use Among Women of Low Income

    Open Access•Wendy Sword•Qualitative Health Research•2003

  • Social Identities across the Life Course

    Open Access•Jenny Hockey, Allison James•Social identities across the life…•2003

  • How and why do doctors communicate diagnostic uncertainty

    Open Access•Caitríona Cox, Thea Hatfield et al.•Health Expectations•2024

  • Now as a Liminal Space, Writing as a Patchwork

    Open Access•Sun Young Lee•Qualitative Inquiry•2021

  • My Sister’s Keeper

    Open Access•Kesha Morant Williams•Journal of Medical Humanities•2018

  • Through Madness and Back Again

    Matthew S Johnston•Journal of Autoethnography•2020

  • A “Performative-I” Copresence

    Tami Spry•Text and Performance Quarterly•2006

  • Gender, older female bodies and autoethnography

    Open Access•E Ettorre•Women s Studies International Forum•2005

  • Victor Turner and liminality

    Harry Wels, Kees Van Der Waal et al.•Anthropology Southern Africa•2011

  • As if I was a spacecraft returning to Earth's atmosphere. Expanding insights into illness narratives and childhood cancer through evocative autoethnography

    Open Access•Eva-Mari Andersen, M S Michael et al.•Health An Interdisciplinary…•2024

  • Uncertainty Management Strategies in Communication About Urinary Tract Infections

    Open Access•Alaina Leverenz, R Aída Hernández•Qualitative Health Research•2023

  • The Ritual Process

    Victor Turner, Alfred Harris et al.•Ritual Process•2017

  • Black Epistemologies and Blues Methodology

    Open Access•Melissa Speight Vaughn•Qualitative Inquiry•2020

  • Under Erasure

    Open Access•Nicole L Defenbaugh, Nicole Defenbaugh•Qualitative Inquiry•2008

  • Researching the Images of Evil Events

    Open Access•Lisa Herman, Lisa Amelia Herman•Qualitative Inquiry•2005

Unique citing works1
Citations per year1
Citation span2026 - 2026 (1)
Citation velocitycurrent
Highly citedNo
Citation typesNeutral: 1
Ethnos_APP • Open Source Project • MIT License • Frontend v2.0.0 • Privacy and Cookies • API Documentation: api.ethnos.app/docs • API Source Code: GitHub • DOI: 10.5281/zenodo.17049435 • Frontend Source Code: GitHub • DOI: 10.5281/zenodo.17050053 • cruz.rio.br • Expectantes Misericordiae