Data Protection in Sociological Health Research
A Critical Narrative about the Challenges of a New Regulatory Landscape
Dados Bibliográficos
| ID | 2392278 |
|---|---|
| Autores | Hélder Raposo (0000-0002-3614-5661, Lisbon School of Health Technology – Polytechnic Institute of Lisbon, Portugal, autor correspondente), Sara Melo (0000-0001-5663-6997, Higher Institute of Social Work of Oporto, Portugal), Catarina Egreja (0000-0003-1396-1102, Centro de Investigação Interdisciplinar Egas Moniz (CiiEM), Instituto Universitário Egas Moniz (IUEM), Monte de Caparica, Portugal) |
| Ano | 2022 |
| Volume | 27 |
| Fascículo | 4 |
| Páginas | 1060-1076 |
| Data de publicação | 2022-12-01 |
| Peer Reviewed | Sim |
| Open Access | Sim |
| Tipo | ARTICLE |
| Periódico | Sociological Research Online (JOURNAL) |
| Identificadores do periódico | ISSN: 1360-7804 • E-ISSN: 1360-7804 |
| Editora | SAGE Publications Inc (PUBLISHER) |
| DOI | 10.1177/13607804221107676 |
| OpenAlex | W4296182489 |
| Idioma | EN |
| Citações recebidas | 3 |
| Referências citadas | 40 |
The recent implementation of the General Data Protection Regulation (GDPR) establishes a set of formal requirements that reinforce personal data protection, namely, those concerning the collection, treatment, and dissemination of data on research participants. With the application of this new legal provision at the European level, new types of restrictions are emerging, whose nature and reach intensify the tension between demands for privacy and scientific freedom in research. In this article, we take as a reference an ongoing research taking place in Portugal, in the field of Sociology of Health, concerning the consumption of medicines by professionals exposed to high-performance pressure. Our main objective is to identify and analyse the implications of regulatory challenges faced in the research process and how the researchers managed and overcame them. We present a critical narrative that sheds light on the nature of the choices taken while also assessing the practical implications for the operationalisation of the research. We conclude by noting that, despite the benefits that may flow from the application of GDPR, the new requirements regarding the protection of personal data may override the ethical principles of scientific research and strengthen regulatory restrictions on conducting research. In the research concerned, the significant practical implications were indirect access to participants, a more time-consuming process in terms of participant adherence and a temporal discrepancy between the different stages of recruitment
Business · Data Protection Act 1998 · Engineering ethics · General Data Protection Regulation · Knowledge management · Narrative · Political science · Public relations · Sociology · Computer Science · Data Analysis and Archiving · Ethics in Clinical Research · Focus Groups and Qualitative Methods · Law
Situated responsibility in interdisciplinary research ethics
Balancing Different Legal and Ethical Requirements in the Construction of Informed Consents in Qualitative International Collaborative Research Across Continents - Reflections from a Scandinavian Perspective
Let’s talk! Calling for a debate on the GDPR's impact on qualitative research
The purpose of mess in action research
Factors affecting response rates of the web survey
Journal of Computer-Mediated Communication
Practical and Ethical Dilemmas in Researching Sensitive Topics with Populations Considered Vulnerable
The Ethical Dilemma of Ethical Committees
Investigating recruitment and completion mode biases in online and door to door electronic surveys
Improving web survey efficiency
Seeking university Research Ethics Committee approval
Ethical ‘mess’ in co-produced research
The effect of busyness on survey participation
An alternative ethics for research
When the snowball fails to roll and the use of ‘horizontal’ networking in qualitative social research
Email subject lines and response rates to invitations to participate in a web survey and a face-to-face interview
Informational privacy post GDPR – end of the road or the start of a long journey
Social Science Gets the Ethics Treatment
Compensating for Low Topic Interest and Long Surveys
After Method
Sampling Knowledge
Conflicting notions of research ethics
Ethics and the Ruling Relations of Research Production
Reframing Research Ethics
Creeping Ethical Regulation and the Strangling of Research
Bureaucracy and Beyond
Informed Consent and the Research Process
Ethical Dilemmas Using Social Media in Qualitative Social Research
Getting Beyond the 'Official Line
| Obras citantes distintas | 3 |
|---|---|
| Citações por ano | 1,5 |
| Intervalo de citações | 2024 - 2026 (3) |
| Velocidade de citação | current |
| Altamente citado | Não |
| Tipos de citação | Neutras: 3 |