Nothing About us Without us
Research Methods Enabling Participation for Aged Care Residents Who Have Dementia
Bibliographic Data
| ID | 2411142 |
|---|---|
| Authors | Kay Shannon (0000-0003-1062-2578), Jed Montayre (0000-0002-2435-8061), Susan Neville (0000-0002-1699-6143) |
| Year | 2021 |
| Volume | 20 |
| Publication date | 2021-01-01 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | International Journal of Qualitative Methods (JOURNAL) |
| Journal identifiers | ISSN: 1609-4069 • E-ISSN: 1609-4069 |
| Publisher | SAGE Publications Inc (PUBLISHER) |
| DOI | 10.1177/16094069211055938 |
| OpenAlex | W4205177242 |
| Language | EN |
| Citations received | 5 |
| References cited | 20 |
The voices of people living with dementia are rarely included in primary data collection due to cognitive challenges and the concerns of researchers and others about limitations associated with informed consent. This article presents a successfully implemented, step-by-step process enabling effective participation of aged care residents with dementia using a case study approach. Three methodological and critical steps in data collection were identified that led to the successful participation of residents with dementia in research. The process corresponds with, yet is uniquely different from the common elements in the qualitative research process. These are active participation during data collection, researcher familiarization with participants, and their set interval and time-lapse considerations (timeline). The process of involvement of people with dementia in research should proceed at a pace that is guided by the participants. It is important to consider participant interview pace, pattern, and the conversation time points when interruptions occur, to restart the whole interview process. Researchers need to facilitate active engagement by building and maintaining authentic relationships with the participants
Alternative medicine · Conversation · Data collection · Dementia · Disease · Informed consent · Medical education · Pace · Process (computing · Qualitative research · Set (abstract data type · Sociology · Timeline · Computer Science · Dementia and Cognitive Impairment Research · Education, Healthcare and Sociology Research · Medicine · Mental Health and Patient Involvement · Psychology · Gerontology
Exploring advance care planning discourses in scottish dementia policies
An Art Exhibition on Creative Activities of Family Members of Persons with Dementia as an Effective Tool for Science Communication
Observations on strategies used by people with dementia to manage being assessed using validated measures
Co-Creating GenAI-Generated Visualizations of People Living With Dementia
Decision Criteria for the Ethically Reflected Choice of a Member Check Method in Qualitative Research
Ethical and Methodological Issues in Interviewing Persons With Dementia
Participatory research
Outline of a Theory of Practice
Realism and Social Science
Reading Level and Comprehension of Research Consent Forms
Explaining Society
A Realist Theory of Science
Reflections and Recommendations for Conducting In-Depth Interviews With People With Dementia
| Unique citing works | 5 |
|---|---|
| Citations per year | 1,67 |
| Citation span | 2023 - 2026 (4) |
| Citation velocity | current |
| Highly cited | No |
| Citation types | Neutral: 5 |