Sequential Research to Evaluate the Impact of Patient and Public Involvement on Cancer Research Outcomes
Using Interviews, Stimulus Material and a Modified Delphi Technique
Bibliographic Data
| ID | 2411239 |
|---|---|
| Authors | Raksha Pandya-Wood (0000-0002-4544-6247, Independant Researcher, Malaysia) |
| Year | 2022 |
| Volume | 21 |
| Publication date | 2022-04-01 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | International Journal of Qualitative Methods (JOURNAL) |
| Journal identifiers | ISSN: 1609-4069 • E-ISSN: 1609-4069 |
| Publisher | SAGE Publications Inc (PUBLISHER) |
| DOI | 10.1177/16094069221081606 |
| OpenAlex | W4214494848 |
| Language | EN |
| Citations received | 2 |
| References cited | 63 |
Evaluating patient and public involvement (PPI) in healthcare research continues to attract international interest. This article discusses how one exemplar study evaluated the impact of PPI on cancer research outcomes, with user involvement sewn into the design. The research aligned to interpretivist and pragmatist paradigms and resulted in a mixed methods sequential design. Phase 1 involved 23 in-depth interviews to explore perceptions of impact of PPI on cancer research outcomes with patients, researchers and stakeholders. Analysis from Phase 1 formed the basis of a 'stimulus paper' to use in Phase 2. Phase 2 adopted the modified Delphi technique with a virtual panel of 35 experts. This research found several factors shaped the impact of PPI on cancer research outcomes. However, the data itself are not the foci of this article, the methodological process, theoretical decisions, limitations and lessons learned across the research are
Delphi · Delphi method · Knowledge management · Perception · Pragmatism · Research design · Sociology · Computer Science · Delphi Technique in Research · Health Policy Implementation Science · Mental Health and Patient Involvement · Psychology · Artificial Intelligence
Reflective Interviewing
Consensus development methods, and their use in clinical guideline development.
Consulting the oracle
Closing the gap between research and practice
An Experimental Application of the DELPHI Method to the Use of Experts
GRIPP2 reporting checklists
The impact of patient and public involvement on UK NHS health care
Counting in Qualitative Research
The answer is 17 years, what is the question
Research design
Choice vs. voice? PPI policies and the re‐positioning of the state in England and Wales
Comment on Halo Effects in Rating and Evaluation Research
The Delphi technique as a forecasting tool
Problems of Reliability and Validity in Ethnographic Research
The Delphi method and health research
Mapping the impact of patient and public involvement on health and social care research
Patient and clinician collaboration in the design of a national randomized breast cancer trial
Patient and service user engagement in research
Service user involvement in cancer care
The research-practice gap
A policy analysis of the Expert Patient in the United Kingdom
Doing Mixed Methods Research Pragmatically
Applying the Delphi technique in a study of GPs’ information requirements
Successes and Failures in the Implementation of Evidence-Based Guidelines for Clinical Practice
Using thematic analysis in psychology
Naturalistic inquiry
Process Tracing and Elite Interviewing
Sampling Knowledge
Mixing Qualitative Methods
Semiotic theory on qualitative interviewing using stimulus texts
Divided care and the Third Way
| Unique citing works | 2 |
|---|---|
| Citations per year | 2 |
| Citation span | 2025 - 2025 (1) |
| Citation velocity | recent |
| Highly cited | No |
| Citation types | Neutral: 2 |