Towards Culturally Sensitive Shared Decision-Making in Oncology A Study Protocol Integrating Bioethical Qualitative Research on Shared Decision-Making Among Ethnic Minorities With Ethical Reflection

Bibliographic Data

ID2411255
AuthorsRoukayya Oueslati (0000-0003-1617-4526), Ria Reis, Martine C De Vries (0000-0002-3178-7470), Meralda T Slager, Meralda Slager (0000-0001-9067-0099), Joost R M Van Der Sijp, Anne M Stiggelbout (0000-0002-6293-4509), Dorothea P Touwen
Year2022
Volume21
Publication date2022-04-01
Peer ReviewedYes
Open AccessYes
TypeARTICLE
VenueInternational Journal of Qualitative Methods (JOURNAL)
Journal identifiersISSN: 1609-4069 • E-ISSN: 1609-4069
PublisherSAGE Publications Inc (PUBLISHER)
DOI10.1177/16094069221086731
OpenAlexW4226416818
LanguageEN
Citations received1
References cited96

Background Shared decision-making (SDM) is often considered the ideal for decision-making in oncology. Views of specific groups such as ethnic minorities have seldom been considered in its development. Aim In this study we seek to assess in oncology if there is a need for adaptation of the current SDM model to ethnic minorities and to formulate possible adjustments. Design This study is embedded in empirical bioethics, an interdisciplinary approach integrating empirical data with ethical reasoning to formulate normative conclusions regarding a practice. For the empirical social scientific part, a cross-sectional qualitative study will be conducted; for the ethical reflection the Reflective Equilibrium will be used to develop a coherent view on the application of SDM among ethnic minorities in oncology. Method Semi-structured interviews combined with visual methods (timelines and relational maps) will be held with healthcare professionals (HCPs), ethnic minority patients, and their relatives to identify values steering the behavior of these actors in SDM. In addition, focus groups (FGs) will be held with ethnic minority community members to identify value structures at the group level. Respondents will be recruited through organizations with access to ethnic minorities and collaborating hospitals. Data will be analyzed using a reflexive thematic analysis through the lens of Schwartz's value theory. The results of the empirical phase will be included in the RE to formulate possible adjustments of the SDM model, if needed. Discussion The integration of empirical data with ethical reflection is an innovative method in decision-making. This method enables a systematic and profound assessment of the need for adaptation of SDM and the formulation of theoretically and empirically based suggestions for adaptations of the model. Findings of this study may enrich the SDM model

Bioethics · Cultural diversity · Empirical research · Engineering ethics · Ethnic group · Focus group · Medical education · Political science · Qualitative research · Reflexivity · Social science · Sociology · Thematic analysis · Ethics in medical practice · Medicine · Patient Dignity and Privacy · Patient-Provider Communication in Healthcare · Psychology · Social Psychology

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