Skip to main content

ETHNOS_APP

Home • Search • Journals • List 0

Te Kore and the Artiste within

De-Tyrannizing Autistic Viewpoints in Life, Self, and Identity through Creative Methodologies

Bibliographic Data

ID2411542
AuthorsMichelle Whitehead (0000-0003-4910-7776, Sheridan College - Davis Campus, Brampton, ON, Canada)
Year2023
Volume22
Publication date2023-10-01
Open AccessYes
TypeARTICLE
VenueInternational Journal of Qualitative Methods (JOURNAL)
Journal identifiersISSN: 1609-4069 • E-ISSN: 1609-4069
PublisherSAGE Publications Inc (PUBLISHER)
DOI10.1177/16094069231189612
OpenAlexW4384433737
LanguageEN
Citations received1
References cited22

The voices of the autistic community have been systematically forfeited in research and practice, both as a consequence of the double empathy problem and, as a direct result of albeist methodic approaches to researching and representing autism (Milton, 2012., Goodley, 2016, 2018., Heilker & Yergeau, 2011., Hobson et al, 2022., Ridout, 2017). Methodologically speaking, autism creates challenges for allistic researchers, particularly as there is an associated 'exaggerated risk' of researching autistic people and as researchers frequently study and thus experience autism, from etic perspectives (Van De Hoonard, 2016, p. 585). This paper contends that these challenges have resulted in a lack of flexibility in methodologies designed to protect those at risk of harm, creating disproportionate fear and an over-surveillance of autistic research participants, despite their potential. Inertia is a direct consequence of this, which manifests itself twofold. Firstly, as the struggle researchers have in capturing meaningful and authentic autistic representation and secondly, of the methodic implications autistic inertia presents. What is suggested, therefore, is a subversion of homogeneous ways of knowing from the production of quasi-aesthetic representations of autistic voice, favoring those creative methodologies which appreciate that autism is not experienced diachronically. As to capture the realities of contemporary autistic life, dividing practices of ableism must be challenged (Goodley, 2018). Therefore, by centralizing autistic research participants as 'insiders' to autistic worlds, researchers will have to lay aside academic habits and rethink, heuristically, how to privilege unobscured autistic voices through transabelism (Garland-Thompson, 2005). For in order to carve out hybrid dilatory spaces from which autistic people can develop their narrative capital, a transableist agenda must be pushed. What will ensue are creative and flexible methodologies that align with social justice beliefs and resist methodic stasis and inertia; as decisions to explore the lifeworlds we experience, as autists, comes with no modus operandi

Aesthetics · Autism · Developmental psychology · Empathy · Flexibility (engineering · Harm · Identity (music · Subversion · Viewpoints · Autism Spectrum Disorder Research · Children's Rights and Participation · Disability Rights and Representation · Psychology · Social Psychology

  • Reflecting on 'Doing Better

    Open Access•Sarah Wayland, Annmaree Watharow•International Journal of…•2025

  • Dis/ability Studies

    Dan Goodley•Dis/ability Studies•2014

  • Analyzing Narrative Reality

    Jaber Gubrium, Jaber F Gubrium et al.•Analyzing Narrative Reality•2009

  • Commentary

    Open Access•Elizabeth Pellicano•Journal of Child Psychology and…•2020

  • Inclusive Research Design

    Sue McKemmish, Frada Burstein et al.•Information Communication & Society•2012

  • Considering Silences in Narrative Inquiry

    Open Access•Bodil Hansen Blix, Caine et al.•Journal of Contemporary Ethnography•2021

  • The autistic voice and creative methodologies

    Open Access•Susy Ridout•Qualitative Research Journal•2017

  • Tacit narratives

    Open Access•Evelien Ketelaar, Eric Ketelaar•Archives and Museum Informatics•2001

  • On the ontological status of autism

    David Milton, Damian E M Milton•Disability & Society•2012

  • Moral Law

    Immanuel Kant•Moral Law•2013

  • After Method

    John Law•After Method•2004

  • Hybrid Ethnography

    Liz Przybylski•Hybrid Ethnography•2021

  • The Dis/ability Complex

    Open Access•Dan Goodley, Dan Goodley Dan Goodley•DiGeSt Journal of Diversity and…•2018

  • Becoming dishuman

    Open Access•Dan Goodley, Daniel Goodley et al.•Discourse Studies in the Cultural…•2016

Citations per year1
Citation span2025 - 2025 (1)
Highly citedNo

Tools

Open DOIOpen Access
Ethnos_APP • Open Source Project • MIT License • Frontend v2.0.0 • Privacy and Cookies • API Documentation: api.ethnos.app/docs • API Source Code: GitHub • DOI: 10.5281/zenodo.17049435 • Frontend Source Code: GitHub • DOI: 10.5281/zenodo.17050053 • cruz.rio.br • Expectantes Misericordiae