Using Focussed Ethnography to Observe and Understand the Actions and Interactions of People With Prader-Willi Syndrome When They Exercise at a Community Gym
A Protocol
Bibliographic Data
| ID | 2411813 |
|---|---|
| Authors | Cara Schofield (0000-0003-0256-0899), Christine Bigby (0000-0001-7001-8976), Jenny Downs (0000-0003-4847-7118), Nicholas F Taylor (0000-0001-9474-2504), Nora Shields (0000-0002-6840-2378) |
| Year | 2024 |
| Volume | 23 |
| Publication date | 2024-01-01 |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | International Journal of Qualitative Methods (JOURNAL) |
| Journal identifiers | ISSN: 1609-4069 • E-ISSN: 1609-4069 |
| Publisher | SAGE Publications Inc (PUBLISHER) |
| DOI | 10.1177/16094069241289307 |
| OpenAlex | W4403378100 |
| Language | EN |
| References cited | 30 |
Exercise for people with Prader-Willi syndrome (PWS) is important for their health and wellbeing and can provide opportunities for community participation. However, they may find it difficult to participate in some contexts, such as community gyms because social and environmental barriers in these settings may compound difficulties caused by physical impairments or intellectual disability. This study aims to observe and understand the actions and interactions of people with PWS when they exercise in community gyms. A focussed ethnographic study will be conducted. Field notes will be taken in community gyms where people with PWS are participating in a structured exercise program for six months as part of a randomised control trial called PRESTO. Up to ten participants will be observed, with at least three observations planned per participation during the program. Gym sessions observed will be approximately 1 hour long. Within the framework of interpretive description, reflective thematic analysis will be used to interpret observational data. Our findings will inform how best to support people with PWS to exercise at a community gym. Trial Registration Number: ACTRN12620000416998; Australian and New Zealand Clinical Trial Registry
Alternative medicine · Ethnography · Protocol (science · Sociology · Anthropology · Genetic Syndromes and Imprinting · LGBTQ Health, Identity, and Policy · Medicine · Psychology
Defining social inclusion of people with intellectual and developmental disabilities
Perceived barriers and facilitators to physical activity for children with disability
Qualitative research methodologies
Qualitative Rigor or Research Validity in Qualitative Research
Thematic analysis
Interpretive description
Using thematic analysis in psychology
Criteria for assessing the trustworthiness of naturalistic inquiries
Learning Difficulties', the Social Model of Disability and Impairment
Validity in Qualitative Research
The Analytic Challenge in Interpretive Description
| Highly cited | No |
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