Dados Bibliográficos

Resumo

Practical hurdles, as well as a lack of education about both how to include people with physical disabilities (PWPD) in one's research and the implications of failing to do so, have led scholars to exclude PWPD from their research agendas. This includes selecting against topics that focus on disability and designing general research that, intentionally or not, excludes the participation of PWPD. Based on the ethical framework of principlism, I argue that while initially intended to protect disabled people from abusive and extractive research methods, the use of the label 'vulnerable' and the continued exclusion of people with physical disabilities from participation in research have reinforced essentialist and ableist stereotypes that breach their rights to autonomy and justice. To combat this, I put forth five suggestions to conduct more ethical research with the inclusion of physically disabled participants: (1) researchers should not let the pressure to publish encourage exclusion as a shortcut, (2) academic training should focus more on providing a background in ethics, (3) researchers should build considerations of accessibility into all of their research plans, (4) researchers should remember that neither ethics nor access is one-size-fits-all, and (5) researchers should consider how ethical research extends beyond the research itself to how that research is represented. Through the application of these suggestions, we will increase the participation of PWPD, both gaining their perspectives and improving research on disability-focused and non-disability-focused topics alike.

Referências Citadas