With great (statistical) power comes great responsibility: A comment on the ethics of using administrative data to investigate marginalised populations
Dados Bibliográficos
| AUTOR(ES) | |
|---|---|
| AFILIAÇÃO(ÕES) | Institute of Applied Health Sciences, University of Aberdeen, Aberdeen, UK, University of Glasgow, Scotland, United Kingdom, Department of Anthropology, University of Copenhagen, School of Social Work and Social Policy, University of Strathclyde, Glasgow, UK, University of Dundee, PSPartnership (Scotland) Ltd, UK |
| ANO | 2024 |
| TIPO | Artigo |
| PERIÓDICO | Big Data & Society |
| ISSN | 2053-9517 |
| E-ISSN | 2053-9517 |
| DOI | 10.1177/20539517241296058 |
| ADICIONADO EM | 2025-08-18 |
Resumo
As health data infrastructure improves, we have the opportunity to link increasing volumes of data in order to investigate important health problems. This is perhaps most pertinent when looking at the experiences and outcomes of our most disadvantaged groups, who are often invisible in data obtained through primary research. Whilst these data offer enormous opportunity, there are also ethical implications in their use, which are less frequently discussed than in relation to their qualitative counterparts. As a diverse group of clinicians and academics working across public health, we share our experience and understanding of how we can improve our reflexivity in health data science and ensure that research in this area is ethically conducted in co-production with the people whose data we are using. We discuss the potential opportunities, challenges and impacts of using administrative data to investigate marginalised populations.