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A Co‐Developed Evaluation Framework for a Patient Engagement Programme Within a National Dementia Research Network

Bibliographic Data

ID24230146
AuthorsMastoora Rizai (0009-0002-1345-4362, Dalla Lana School of Public Health University of Toronto Toronto Ontario Canada), Linda Grossman (Canadian Consortium on Neurodegeneration in Aging (CCNA), Engagement of People with Lived Experience of Dementia (EPLED) Advisory Group Toronto Canada), Inbal Itzhak (0009-0007-0054-7099, Lady Davis Institute, Centre intégré universitaire de santé et de services sociaux du Centre‐Ouest‐de‐l'Île‐de‐Montréal Montreal Québec Canada), Rosette Loughlin (Canadian Consortium on Neurodegeneration in Aging (CCNA), Engagement of People with Lived Experience of Dementia (EPLED) Advisory Group Toronto Canada), Karen Myers Barnett (Canadian Consortium on Neurodegeneration in Aging (CCNA), Engagement of People with Lived Experience of Dementia (EPLED) Advisory Group Toronto Canada), Ellen Snowball (KITE Research Institute, Toronto Rehabilitation Institute University Health Network Toronto Ontario Canada), Juanita-Dawne Bacsu (0000-0002-2819-1617, School of Nursing Thompson Rivers University Kamloops British Columbia Canada), Kelly Beaton (Canadian Consortium on Neurodegeneration in Aging (CCNA), Engagement of People with Lived Experience of Dementia (EPLED) Advisory Group Toronto Canada), Emma Lanza (Lady Davis Institute, Centre intégré universitaire de santé et de services sociaux du Centre‐Ouest‐de‐l'Île‐de‐Montréal Montreal Québec Canada), Jennifer Bethell (0000-0002-6141-9011, KITE Research Institute, Toronto Rehabilitation Institute University Health Network Toronto Ontario Canada)
Year2026
Volume29
Issue5
Publication date2026-10-01
Open AccessYes
TypeARTICLE
VenueHealth Expectations (JOURNAL)
Journal identifiersISSN: 1369-6513 • E-ISSN: 1369-7625
PublisherWiley (PUBLISHER • GB)
DOI10.1111/hex.70899
OpenAlexW7222069991
LanguageEN
References cited27

Evaluation and Performance Assessment · Health Policy Implementation Science · Mental Health and Patient Involvement

  • The use of co-production, co-design and co-creation to mobilise knowledge in the management of health conditions

    Open Access•Cheryl Grindell, Elizabeth Coates et al.•BMC Health Services Research•2022

  • Dementia prevention, intervention, and care

    Open Access•Gill Livingston, Jonathan Huntley et al.•The Lancet•2024

  • Arts-based evaluation of the Communities ChooseWell program

    Open Access•Karyn Hurlbut, Astrid Brousselle•Evaluation and Program Planning•2025

  • Frameworks for supporting patient and public involvement in research

    Open Access•Trisha Greenhalgh, Lisa Hinton et al.•Health Expectations•2019

  • Methods for Involving People With Dementia in Health Policy and Guideline Development

    Open Access•Felix Bühler, Jennifer Geyer et al.•Health Expectations•2025

  • Evaluation of patient engagement in medicine development

    Open Access•Lidewij Eva Vat, Teresa Finlay et al.•Health Expectations•2021

  • Patient and public engagement in research and health system decision making

    Open Access•Aurelien Boivin, Audrey L'Espérance et al.•Health Expectations•2018

  • Patient engagement in health implementation research

    Open Access•Mathieu Bisson, Kris Aubrey‐Bassler et al.•Health Expectations•2023

  • Methods and impact of engagement in research, from theory to practice and back again

    Open Access•Laura Forsythe, Laura P Forsythe et al.•Quality of Life Research•2017

  • Capturing the Imagination

    Michelle Searle, Michelle J Searle et al.•Canadian Journal of Program…•2016

  • The Case for Participatory Evaluation in an Era of Accountability

    Open Access•Jill Anne Chouinard•American Journal of Evaluation•2013

  • Integrating Arts-Based Inquiry in Evaluation Methodology

    Open Access•Helen Simons, Brendan Mccormack•Qualitative Inquiry•2007

Highly citedNo

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Open DOIOpen Access
Ethnos_APP • Open Source Project • MIT License • Frontend v2.0.0 • Privacy and Cookies • API Documentation: api.ethnos.app/docs • API Source Code: GitHub • DOI: 10.5281/zenodo.17049435 • Frontend Source Code: GitHub • DOI: 10.5281/zenodo.17050053 • cruz.rio.br • Expectantes Misericordiae