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Challenges in achieving positive outcomes for children with complex congenital conditions

Safety and continuity of care

Bibliographic Data

ID3606401
AuthorsCynthia Hunter (0000-0002-5511-5660, The University of Sydney, corresponding author), Cynthia L Hunter, Carolyn West (Children's Hospital at Westmead)
Year2010
Volume19
Issue1
Pages86-99
Publication date2010-04-01
Peer ReviewedYes
Open AccessNo
TypeARTICLE
VenueHealth Sociology Review (JOURNAL)
Journal identifiersISSN: 1446-1242 • E-ISSN: 1839-3551
PublisherInforma UK Limited (PUBLISHER • GB)
DOI10.5172/hesr.2010.19.1.086
OpenAlexW1983201241
LanguageEN
Citations received1
References cited12

Our aim is to examine a series of systems-level challenges to the continuity of care of a newborn (i.e. a particular case) in the rural–urban context. These challenges include the state-wide system whereby inadequate bed numbers relative to demand are monitored on a daily basis (bed management), specialist medical expertise as a resource, and the flow of information between hospitals in a rural–urban divide. Whether quality of care is maintained in light of these challenges is dependent on the relationships and 'invisible' work of a number of clinicians. Of critical importance are issues involving affective or invisible work and the solidary networks and relationships of clinicians. Ethnographic participant-observations were made of clinical teams and their networks in an Australian rural–urban health care service involving the multiple hospital admissions of a seriously-ill infant. The findings demonstrate that the system works because of clinicians' willingness to enact their practice knowledge, the networking they undertake, their resilience and the affective labour they perform to attend to patients' and families' needs. Ultimately the continuity of care is embedded in the quality of relationships as much as in specialist knowledge or professional expertise.Keywords: networkingcontinuity of careoutcomesaffective labourresources of resiliencesociology

Continuity of care · Health care · Political science · Project commissioning · Public relations · Publishing · Sociology · Cerebral Palsy and Movement Disorders · Child and Adolescent Health · Family and Disability Support Research · Law · Medicine · Nursing · Psychology · Gerontology

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    Open Access•Carole A Estabrooks, William Rutakumwa et al.•Qualitative Health Research•2005

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    Open Access•J Waring, Justin J Waring•Health An Interdisciplinary…•2007

  • Visibilising clinical work

    Rick Iedema, D Long et al.•Health Sociology Review•2006

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    Open Access•Kaja Finkler, Cynthia Hunter et al.•Journal of Contemporary Ethnography•2008

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Unique citing works1
Citations per year1
Citation span2026 - 2026 (1)
Citation velocitycurrent
Highly citedNo
Citation typesNeutral: 1
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