Looking forward, looking back

The narrative of testing positive to Huntington's Disease

Dados Bibliográficos

ID3613627
AutoresRose Leontini (0000-0001-8987-2603, The University of Sydney, autor correspondente)
Ano2006
Volume15
Fascículo2
Páginas144-155
Data de publicação2006-06-01
Peer ReviewedSim
Open AccessNão
TipoARTICLE
PeriódicoHealth Sociology Review (JOURNAL)
Identificadores do periódicoISSN: 1446-1242 • E-ISSN: 1839-3551
EditoraInforma UK Limited (PUBLISHER • GB)
DOI10.5172/hesr.2006.15.2.144
OpenAlexW2010312742
IdiomaEN
Citações recebidas6
Referências citadas16

Predictive testing for Huntington’s Disease produces new subjectivities. In addition, receiving a gene-positive result induces new relationships towards one’s body, close family members, and one’s future. In this article I examine the story of one woman who, following a gene-positive test result, described her search for ‘signs’ of disease, as well as ways in which to accommodate her new ‘status’. The narrative draws attention to how people who undergo a genetic test make sense of the anticipation of illness, how they experience the body in relation to that possibility, and how they negotiate the tension between the abstraction of genetic ‘truths’, and the materiality of a body

Aesthetics · Art · Biology · Disease · Huntington's disease · Literature · Narrative · Negotiation · Predictive testing · Social science · Sociology · Empathy and Medical Education · Genetic Neurodegenerative Diseases · Medicine · Psychology · Science Education and Perceptions · Social Psychology