How to live with a taboo instead of 'breaking it'. Alternative empowerment strategies of people with incontinence
Bibliographic Data
| ID | 3633063 |
|---|---|
| Authors | Maartje Hoogsteyns (0000-0001-8694-1490, Amsterdam UMC Location University of Amsterdam, corresponding author), Hilje Van Der Horst (0000-0001-5978-9200, Wageningen University & Research) |
| Year | 2015 |
| Volume | 24 |
| Issue | 1 |
| Pages | 38-47 |
| Publication date | 2015-01-02 |
| Peer Reviewed | Yes |
| Open Access | No |
| Type | ARTICLE |
| Venue | Health Sociology Review (JOURNAL) |
| Journal identifiers | ISSN: 1446-1242 • E-ISSN: 1839-3551 |
| Publisher | Informa UK Limited (PUBLISHER • GB) |
| DOI | 10.1080/14461242.2014.999401 |
| OpenAlex | W2072651392 |
| Language | EN |
| References cited | 20 |
Many people throughout the world live with incontinence; however, they infrequently make themselves heard. In the current discourse regarding patient empowerment, this poses a dilemma as empowerment is usually believed to emerge from an individual or collective voice. A common response is that the existing taboo needs to be confronted. However, the metabolic functions of the body are a private affair for most people and ‘coming out’ as being incontinent is not necessarily empowering. Hence, solely focusing on the breaking of taboos to improve empowerment will not suffice. On the basis of nine biographic interviews with Dutch people with incontinence, we examine alternative forms of empowerment in everyday practices. Three strategies are detected: creating predictability; learning how to hide incontinence products; and confronting the incontinent body in encounters with others. Above all, it appears that sharing experiential knowledge on all these matters with peers can lead to more promising forms of empowerment for this group of people than the more usual discourse on voice and taboo
Dilemma · Empowerment · Epistemology · Lifeworld · Political science · Project commissioning · Public relations · Publishing · Social science · Sociology · Taboo · Aging, Elder Care, and Social Issues · Anthropology · Disability Rights and Representation · Feminism, Gender, and Sexuality Studies · Gender Studies · Healthcare innovation and challenges · Law · Psychology · Social Policies and Family · Social Sciences and Governance
Stigma
The Disability Studies Reader
Handbook of Disability Studies
Qualitative Research Interviewing
Breathtaking practicalities
Enacting Appreciations
Being normally different? Changes to normalization processes
Disability activisms
(In)visibility
The Social Model of Disability and the Disappearing Body
Egg Timers, Human Values, and the Care of Autistic Youths
Developing a cultural model for long-term female urinary incontinence
Stigmatizing a "Normal" Condition
| Citation velocity | historical |
|---|---|
| Highly cited | No |