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How a 25-year-old periodic survey for lesbian, bisexual and queer women responded and adapted to gender diversity

A Reflexive Analysis

Bibliographic Data

ID3633722
AuthorsJulie Mooney-Somers (0000-0003-4047-3403, The University of Sydney, corresponding author), Jacek Anderst (0000-0002-0342-2968, The George Institute for Global Health), Rachel Deacon (0000-0002-0877-3089, Discipline of Addiction Medicine, Sydney Medical School, University of Sydney, Sydney, Australia)
Year2024
Volume33
Issue2
Pages232-243
Publication date2024-02-17
Peer ReviewedYes
Open AccessNo
TypeARTICLE
VenueJournal of Gender Studies (JOURNAL)
Journal identifiersISSN: 0958-9236 • E-ISSN: 1465-3869
PublisherInforma UK Limited (PUBLISHER • GB)
DOI10.1080/09589236.2022.2162864
OpenAlexW4319831780
LanguageEN
Citations received8
References cited17

Twenty-five years ago, the first Sydney Women and Sexual Health (SWASH) survey sought to generate knowledge about HIV risk for women in contact with Sydney’s gay and lesbian community. SWASH has gone on to become the longest running periodic survey of lesbian, bisexual and queer (LBQ) women’s health. It reflects LBQ women’s lives back to them and makes LBQ women knowable for Australian public policy. But, like all research, the social reality SWASH produces is a partial representation of the target population. As it entered its 12th iteration, it became clear the survey needed to change to better represent trans and gender diverse people’s lives. In this paper, we describe our process of first adding inclusive gender indicators, and then applying a gender diversity lens to all survey questions, data collection and reporting. We reflect on our motivations and fears, and where we can, the consequences on data of previous and new research design choices. Reflexive analysis such as ours, though still rare in quantitative research, promotes accountability to communities we research and the sectors who use the knowledge we produce

Lesbian · Queer · Reflexivity · Sociology · Anthropology · Gender Politics and Representation · Gender Roles and Identity Studies · Gender Studies · LGBTQ Health, Identity, and Policy · Psychology

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    Open Access•A K Smith, Brooke Brady et al.•Health Sociology Review•2026

  • Sexual Behaviour, HIV Prevention and Testing Among Transgender and Non-binary People in a Cross-Sectional Behavioural Surveillance Survey in Aotearoa New Zealand

    Open Access•Peter Saxton, Ryan M Bentham et al.•AIDS and Behavior•2026

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  • Improving Gender and Sexuality Inclusivity of a Long-Running HIV Behavioural Surveillance Survey to Identify New Sexual Practices, HIV Risks, and Maintain Community Support

    Open Access•A K Smith, A TAIT SMITH et al.•AIDS and Behavior•2025

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  • Gender troubles' in researching violence towards LGBTQ+ people

    Paolo Gusmeroli, Luca Trappolin•Journal of Gender Studies•2025

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    Chandra, Alex Broom et al.•Health Sociology Review•2025

  • Queer Data

    Kevin Guyan, Anthony Mandal et al.•Queer Data•2022

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    Open Access•Jessica J Cameron, Danu Anthony Stinson•Social and Personality Psychology…•2019

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  • Measuring Sex, Gender Identity, and Sexual Orientation

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  • Doing reflexivity in psychological research

    Lisa Lazard, Jean McAvoy•Qualitative Research in Psychology•2017

  • The role of reflexivity in feminist psychology

    Open Access•Sue Wilkinson•Women s Studies International Forum•1988

  • Data for queer lives

    Open Access•B Ruberg, Spencer Ruelo•Big Data & Society•2020

  • The social life of data

    Sonja Vivienne, Benjamin Hanckel et al.•Journal of Gender Studies•2023

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Unique citing works8
Citations per year8
Citation span2025 - 2026 (2)
Citation velocitycurrent
Highly citedNo
Citation typesNeutral: 6

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