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Hope and Haunting Images

The Imaginary in Danish Parkinson's Disease Rehabilitation

Bibliographic Data

ID3637583
AuthorsMerete Tonnesen (0000-0001-9186-8259, Aarhus University, corresponding author), Claus Vinther Nielsen (0000-0002-2467-1103, Aarhus University)
Year2024
Volume11
Issue3
Pages1-25
Publication date2024-10-18
Open AccessYes
TypeARTICLE
VenueMedicine Anthropology Theory (JOURNAL)
Journal identifiersISSN: 2405-691X • E-ISSN: 2405-691X
PublisherUniversity of Edinburgh (PUBLISHER • GB)
DOI10.17157/mat.11.3.7486
OpenAlexW4403760849
LanguageEN
Citations received1

Much in life is imagined: hoped for, dreamed about, or dreaded, as we engage with potential futures. Parkinson's disease is a progressive and neuro-degenerative disease, currently incurable. During long-term fieldwork among Danish rehabilitees with Parkinson's disease, rehabilitees' mentioning of hope and images of the future gradually inspired attention to an imaginary dimension in rehabilitation. We explore haunting images and hope among rehabilitees as examples of the imaginary in rehabilitation, but also as windows into how rehabilitees orientate themselves towards an uncertain future. We show how rehabilitees' imaginations of the future resemble hauntings instigating an urge to 'do something' to avoid their actualisation; to insist on living in the now, keeping up training, and partaking in clinical trials. This urge translates into rehabilitation practices, where rehabilitees and professionals work with both hope and rehabilitation goals to maximise the present and postpone the future. We emphasise that hope is a complex phenomenon; it is multiple and has a certain elasticity. A person can carry multiple hopes at once; hope can be agentic, co-created and worked with, located, or be an existential stance

Aesthetics · Art · Danish · Disease · Epistemology · Existentialism · Phenomenon · Physical medicine and rehabilitation · Psychoanalysis · Psychotherapist · The Imaginary · Medicine · Mental Health and Patient Involvement · Mental Health and Psychiatry · Neurology and Historical Studies · Neuroscience · Psychology · Rehabilitation

  • Relative Hope, Relative Care

    Open Access•Merete Tonnesen, Narelle Warren et al.•Qualitative Health Research•2026

Citations per year1
Citation span2026 - 2026 (1)
Highly citedNo
Open DOIOpen Access
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