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An intersectionally aware process for securing free, prior, and informed consent in community-based research

Bibliographic Data

ID3887244
AuthorsTessa Toumbourou (0000-0003-0986-4262, The University of Melbourne, corresponding author), Tessa D Toumbourou (The University of Melbourne), Mia Siscawati (0000-0002-1396-5931, University of Indonesia), Ariane Utomo (0000-0003-2314-9513, The University of Melbourne), Hariati Sinaga (0000-0002-4083-6270, University of Indonesia), Shelly Adelina (University of Indonesia), Ardianingtyas Ibni Albar (University of Indonesia), Hevirona Bani Adam (Borneo Orangutan Survival Foundation), Deti (Borneo Orangutan Survival Foundation), Deti Deti (Borneo Orangutan Survival Foundation), Laura Graham (0000-0003-2944-2526), Laura E Graham (0000-0002-4990-2916, The University of Melbourne), Laura L B Graham (0000-0002-9807-4360, The University of Melbourne), Lambang Septiawan (0000-0002-8190-2676, The University of Melbourne), Andrea Rawluk (0000-0002-9992-4662, The University of Melbourne)
Year2025
Pages1-10
Publication date2025-08-20
Peer ReviewedYes
Open AccessYes
TypeARTICLE
VenueDevelopment in Practice (JOURNAL)
Journal identifiersISSN: 0961-4524 • E-ISSN: 1364-9213
PublisherInforma UK Limited (PUBLISHER • GB)
DOI10.1080/09614524.2025.2543355
OpenAlexW4413338317
LanguageEN
Citations received1
References cited12

Free, prior, and informed consent (FPIC) is a fundamental ethical principle in community-based research. It ensures participants are fully informed about a study’s purpose, risks, and benefits, and their involvement is voluntary and free from coercion. In participatory, community-based research, FPIC must be an ongoing process, reflecting an evolving research process and outcome. In rural Indonesia – and similar settings – effective FPIC processes for community-based research must align with local and Indigenous communities’ collective decision-making, which are often grounded in deliberative dialogue, local protocols, oral agreements, and trust-based, reciprocal relations. It is equally crucial to meaningfully engage marginalised groups who may not feel fully represented by community leaders, to ensure inclusive FPIC processes and decisions. This practice note details an intersectionally aware process for securing FPIC in a participatory project in Indonesia. It shares lessons learned and insights aimed at enhancing inclusive, community-based research and development initiatives around the world

Alternative medicine · Business · Informed consent · Political science · Public relations · Computer Science · Ethics in Clinical Research · Ethics in medical practice · Medicine · Qualitative Research Methods and Ethics

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  • No one’s discussing the elephant in the room

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Unique citing works1
Citations per year1
Citation span2026 - 2026 (1)
Citation velocitycurrent
Highly citedNo

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Open DOIOpen Access
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