Parental experiences of the liminal period of a child's fatal illness
Bibliographic Data
| ID | 4218255 |
|---|---|
| Authors | Bernadetta Janusz (0000-0003-0112-4470, Jagiellonian University Medical College, Poland, corresponding author), Maciej Walkiewicz (0000-0002-5674-5875, Gdańsk Medical University) |
| Year | 2023 |
| Volume | 27 |
| Issue | 4 |
| Pages | 439-457 |
| Publication date | 2023-07-01 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Health An Interdisciplinary Journal for the Social Study of Health Illness and Medicine (JOURNAL) |
| Journal identifiers | ISSN: 1363-4593 • E-ISSN: 1461-7196 |
| Publisher | SAGE Publications Inc (PUBLISHER) |
| DOI | 10.1177/13634593211046850 |
| PMID | 34541921 |
| OpenAlex | W3198923384 |
| Language | EN |
| Citations received | 3 |
| References cited | 41 |
The article offers a description of parents' experiences of their child's ultimately fatal illness as it unfolds over the successive stages of medical treatment, in the context of the liminality theory. The parents ( N = 23) were interviewed 1-4 years after their child's death. The research method involved conducting narrative interviews with parents in order to obtain a spontaneous narration of the child's illness as it unfolded. The grounded theory approach, including the narrative and performative aspects of such parental utterances, was applied as the main research strategy. The results provide insight into the main areas and processes of common parental experiences, such as the pervasive sense of becoming trapped in timelessness and ambiguity. Further states reported by parents included oscillating between a distancing stance and involvement, and a dualistic relationship with medical staff and the medical system: between alignment and disharmony. The study indicates the importance of treating delivery of such a diagnosis as a process rather than as a one-time event. The sense of ambiguity is treated as a kind of necessary parental coping mechanism, whilst the sense of timelessness gives parents a unique sense of time in which they do not have to think about the child's potentially imminent death
Aesthetics · Ambiguity · Developmental psychology · Disease · Distancing · Epistemology · Grounded theory · Liminality · Literature · Narrative · Performative utterance · Psychotherapist · Qualitative research · Sociology · Childhood Cancer Survivors' Quality of Life · Family Support in Illness · Grief, Bereavement, and Mental Health · History · Medicine · Psychology · Social Psychology
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| Unique citing works | 3 |
|---|---|
| Citations per year | 3 |
| Citation span | 2025 - 2025 (1) |
| Citation velocity | recent |
| Highly cited | No |
| Citation types | Neutral: 3 |