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Suffering, hope and diagnosis

On the Negotiation of Chronic Fatigue Syndrome

Bibliographic Data

ID4218329
AuthorsLars-Christer Hydén (0000-0002-3033-9879, Stockholm University), Lisbeth Sachs (Karolinska Institutet)
Year1998
Volume2
Issue2
Pages175-193
Publication date1998-04-01
Peer ReviewedYes
Open AccessYes
TypeARTICLE
VenueHealth An Interdisciplinary Journal for the Social Study of Health Illness and Medicine (JOURNAL)
Journal identifiersISSN: 1363-4593 • E-ISSN: 1461-7196
PublisherSAGE Publications Inc (PUBLISHER)
DOI10.1177/136345939800200204
OpenAlexW1487733928
LanguageEN
Citations received22
References cited29

The medical interview has a central place in the transformation of suffering into disease. The focus in this article is on patients with suspected chronic fatigue syndrome (CFS). Central to the diagnosis of CFS is the absence of a clear medical pathology causing symptoms. To patients it is of central importance to present themselves in the medical interview in a way that makes a diagnosis of CFS possible, which provides both hope for a cure and a social legitimization of their suffering. To doctors it is important that they maintain their position as a medical authority and gatekeeper. This means that in a medical examination the doctor and the patient together must explore the patient's suffering to define symptoms enabling a diagnosis of CFS. The central issue in this article is how doctors and patients in medical interviews negotiate symptoms and diagnostic criteria in search of a legitimate diagnosis and illness, and how this constitutes the central concern in the patient's and doctor's collaborative diagnosis work in the medical encounter

Chronic fatigue syndrome · Disease · Illness behavior · Medical illness · Medical record · Negotiation · Pathology · Psychiatry · Sociology · Fibromyalgia and Chronic Fatigue Syndrome Research · Medicine · Mental Health and Psychiatry · Neurology and Historical Studies · Surgery

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    Open Access•Mia Nelson, Jane Ogden•Social Science & Medicine•2008

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    Open Access•Joshua Banks, Jonathan Banks et al.•Social Science & Medicine•2001

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    Open Access•Debra A Swoboda•Health An Interdisciplinary…•2008

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  • The Nature of Suffering

    Eric J Cassell•The nature of suffering•1991

  • Chronic Fatigue Syndrome

    Open Access•GARY P HOLMES, JONATHAN E KAPLAN et al.•Annals of Internal Medicine•1988

  • Medicine, Rationality and Experience

    Open Access•B J Good•Medicine, Rationality and…•1993

  • Illness as Narrative

    Ann Jurecic•Illness as Narrative (Composition,…•2012

  • Pain as Human Experience

    Good Brodwin, Mary-Jo Delvecchio Good et al.•Pain as Human Experience•1994

  • Patients and Healers in the Context of Culture

    A Kleinman•Patients and Healers in the…•1980

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    Open Access•A Kleinman•Patients and Healers in the…•2023

  • Culture and somatic experience

    N C Ware, A Kleinman•Psychosomatic Medicine•1992

  • Improvisation and authority in illness meaning

    Open Access•L J Kirmayer•Culture Medicine and Psychiatry•1994

  • From sentence to sequence

    Richard M Frankel•Discourse Processes•1984

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    Robin Moremen Uili, Mary‐jo Delvecchio Good et al.•Contemporary Sociology A Journal…•1993

  • Talk at Work

    Robert Hopper, Paul Drew et al.•Contemporary Sociology A Journal…•1994

  • Framing Disease

    Thomas R Cole, Charles E Rosenberg et al.•Journal of American History•1993

  • Going to See the Doctor

    Susan Budd, Gerry V Stimson et al.•British Journal of Sociology•1976

  • An illness behavior paradigm

    Open Access•Angelo A Alonzo•Social Science & Medicine•1984

  • Pilgrimage of pain

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    Gail Jefferson•Social Problems•1988

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    Richard A Hilbert•Social Problems•1984

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    Open Access•N C Ware•Medical Anthropology Quarterly•1992

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    Open Access•Pascal Cathébras•Transcultural Psychiatric…•1994

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    D W Maynard•American Journal of Sociology•1991

Unique citing works22
Citations per year0,85
Citation span2000 - 2025 (26)
Citation velocityrecent
Highly citedNo
Citation typesNeutral: 19
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