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The experience of living with restless legs syndrome

A qualitative study

Bibliographic Data

ID4226844
AuthorsEloise G Harrison (0000-0001-9608-2503, Monash University), Jennifer L Keating (0000-0003-3161-4964, Monash University), Prue E Morgan, Prue Morgan (0000-0002-2573-6562, Monash University)
Year2021
Volume26
Issue8
Pages1154-1167
Publication date2021-07-01
Open AccessYes
TypeARTICLE
VenueJournal of Health Psychology (JOURNAL)
Journal identifiersISSN: 1359-1053 • E-ISSN: 1461-7277
PublisherSAGE Publications Inc (PUBLISHER)
DOI10.1177/1359105319871632
PMID31434518
OpenAlexW2969672227
LanguageEN
Citations received1
References cited34

Restless legs syndrome is a sensorimotor disorder that significantly affects quality of life. This study explored the experience of people living with restless legs syndrome. Focus groups were analysed thematically resulting in five themes. Participants described disempowerment in managing symptoms, difficulty coping and poor understanding of the condition. Participants tried many therapies with little relief and were unable to monitor treatment effects. Concerns with healthcare services were common. Feeling understood provided validation and empowerment. Healthcare providers can help people with restless legs syndrome by improving restless legs syndrome awareness, providing psychosocial support and education, and assisting people to monitor treatment effects

Coping (psychology · Empowerment · Feeling · Focus group · Health care · Insomnia · Patient Empowerment · Psychiatry · Psychosocial · Psychotherapist · Qualitative research · Quality of life (healthcare · Restless legs syndrome · Medicine · Psychology · Restless Legs Syndrome Research · Sleep and related disorders · Sleep and Wakefulness Research · Clinical Psychology · Social Psychology

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    Open Access•Braun, Virginia Braun et al.•Qualitative Research in Psychology•2006

  • Naturalistic inquiry

    Open Access•Yvonna S Lincoln, Egon G Guba et al.•International Journal of…•1985

  • Restless legs syndrome

    Open Access•Maria José V Varela, João Eduardo Coin De Carvalho et al.•Journal of Health Psychology•2013

Citations per year1
Citation span2025 - 2025 (1)
Highly citedNo

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