Working with uncertainty

A grounded theory study of health-care professionals' experiences of working with children and adolescents with chronic fatigue syndrome

Bibliographic Data

ID4226872
AuthorsMegan R Marks (Betsi Cadwaladr University Health Board), Megan Marks (0000-0003-2865-2791), Jaci C Huws (0000-0002-2339-9689, Bangor University), Liz Whitehead (Betsi Cadwaladr University Health Board)
Year2016
Volume21
Issue11
Pages2658-2667
Publication date2016-11-01
Peer ReviewedYes
Open AccessYes
TypeARTICLE
VenueJournal of Health Psychology (JOURNAL)
Journal identifiersISSN: 1359-1053 • E-ISSN: 1461-7277
PublisherSAGE Publications Inc (PUBLISHER)
DOI10.1177/1359105315583367
PMID25957226
OpenAlexW657796519
LanguageEN
Citations received3
References cited20

This grounded theory study explores conceptualisations of chronic fatigue syndrome/myalgic encephalomyelitis from semi-structured interviews with 10 health-care professionals working with children and adolescents. The findings suggest that a lack of a clear empirical understanding of chronic fatigue syndrome/myalgic encephalomyelitis leads to 'working with uncertainty', whereby health-care professionals utilise previous experiences to make sense of the condition and inform their clinical practice. How health-care professionals make sense of chronic fatigue syndrome/myalgic encephalomyelitis may influence the labels given to young people and the interventions they receive. The findings provide insight into a currently understudied area, and highlight potential avenues for further research and clinical practice

Chronic fatigue syndrome · Encephalomyelitis · Grounded theory · Health care · Health professionals · Multiple sclerosis · Psychiatry · Psychological intervention · Qualitative research · Fibromyalgia and Chronic Fatigue Syndrome Research · Health, psychology, and well-being · Medicine · Occupational Health and Safety Research · Psychology

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