Parents' Experiences One Year On from Their Child's Hematopoietic Stem Cell Transplant for Primary Immunodeficiency

Bibliographic Data

ID4226955
AuthorsElizabeth Mcddowell (Great Ormond Street Hospital for Children NHS Trust, UK,), Penny Titman (0000-0002-5792-4699, Great Ormond Street Hospital for Children NHS Trust, UK), Sarah Davidson (0000-0001-7453-9779, University of East London)
Year2010
Volume15
Issue6
Pages897-904
Publication date2010-09-01
Open AccessYes
TypeARTICLE
VenueJournal of Health Psychology (JOURNAL)
Journal identifiersISSN: 1359-1053 • E-ISSN: 1461-7277
PublisherSAGE Publications Inc (PUBLISHER)
DOI10.1177/1359105309359331
PMID20616181
OpenAlexW2016738354
LanguageEN
Citations received3
References cited19

This study explored parental experience one year after hematopoietic stem cell transplant for primary immunodeficiency. Eight parents whose child had undergone transplant were interviewed one year after their child's transplant. Transcripts were analysed using interpretative phenomenological analysis. Four themes emerged: parents' paradoxical existence within an 'abnormal normality'; isolation felt by parents; gender differences between mothers and fathers; and the 'positive growth' parents attribute to their experience. As well as describing stressful or traumatic experiences they identified aspects of post-traumatic growth. The methodology used allowed contrasting experiences to emerge and highlights the importance of follow-up for parents as well as children

Biology · Haematopoiesis · Hematopoietic cell · Hematopoietic stem cell · Human immunodeficiency virus (HIV · Immune system · Immunodeficiency · Primary immunodeficiency · Severe combined immunodeficiency · Stem cell · Adolescent and Pediatric Healthcare · Childhood Cancer Survivors' Quality of Life · Family and Disability Support Research · Hematopoietic Stem Cell Transplantation · Medicine · Psychology · Genetics · Immunology · Internal Medicine · Transplantation

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