Understanding the psychosocial burden of living with advanced COPD in context of palliative care
A mixed methods study
Bibliographic Data
| ID | 4227079 |
|---|---|
| Authors | Bernardo Gonçalves (0000-0002-3885-4859, University of the West of Scotland), Joanne Lusher (0000-0002-7035-0255, Regent's University London), Audrey Cund (0000-0002-7816-8239, University of the West of Scotland), Caroline Sime (0000-0002-6226-3012, Scottish Partnership for Palliative Care, UK), Eileen Harkess-Murphy (0000-0003-0410-4627, University of the West of Scotland) |
| Year | 2025 |
| Volume | 30 |
| Issue | 12 |
| Pages | 3417-3432 |
| Publication date | 2025-03-13 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Journal of Health Psychology (JOURNAL) |
| Journal identifiers | ISSN: 1359-1053 • E-ISSN: 1461-7277 |
| Publisher | SAGE Publications Inc (PUBLISHER) |
| DOI | 10.1177/13591053251316504 |
| PMID | 40079249 |
| OpenAlex | W4408387437 |
| Language | EN |
| References cited | 62 |
People with advanced chronic obstructive pulmonary disease (COPD) face substantial physical and psychosocial challenges influencing their quality of life. This study explored the psychosocial aspects of people with COPD attending palliative care services. Concurrent embedded mixed methods study with 22 individuals was conducted. Data collection involved semi-structured interviews and McGill Quality of Life-Revised and Hospital Anxiety and Depression Scale questionnaires. Findings revealed a negative correlation between quality of life and psychological distress, emphasising that as disease severity increased, so did psychological distress. From interviews emerged three themes: adjustment to living with a debilitating disease, loss of identity and developing lifestyle coping strategies. To conclude, a biopsychosocial perspective to understanding the impact of COPD is essential in identifying mitigating factors which exacerbate disease burden and increase psychological distress of people living with COPD. Implementing a biopsychosocial framework can enhance care by furthering self-management, reducing psychological distress and promoting a person-centred approach
Anxiety · Biopsychosocial model · Context (archaeology · COPD · Coping (psychology · Distress · Palliative care · Psychiatry · Psychosocial · Qualitative research · Quality of life (healthcare · Cancer survivorship and care · Family and Patient Care in Intensive Care Units · Medicine · Nursing · Palliative Care and End-of-Life Issues · Psychology · Clinical Psychology · Gerontology
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| Citation velocity | historical |
|---|---|
| Highly cited | No |