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The Impact of Stigma in Healthcare on People Living with Chronic Illnesses

Dados Bibliográficos

ID4227983
AutoresValerie A Earnshaw (0000-0002-4147-3301, Yale University), Diane M Quinn (0000-0003-4492-7580, University of Connecticut)
Ano2012
Volume17
Fascículo2
Páginas157-168
Data de publicação2012-03-01
Peer ReviewedSim
Open AccessSim
TipoARTICLE
PeriódicoJournal of Health Psychology (JOURNAL)
Identificadores do periódicoISSN: 1359-1053 • E-ISSN: 1461-7277
EditoraSAGE Publications Inc (PUBLISHER)
DOI10.1177/1359105311414952
PMID21799078
OpenAlexW2042748411
IdiomaEN
Citações recebidas105
Referências citadas32

Approximately half of adults are living with a chronic illness, many of whom may feel stigmatized by their chronic illness in different contexts. We explored the impact of internalized, experienced, and anticipated stigma within healthcare settings on the quality of life of 184 participants living with chronic illnesses (e.g. diabetes, inflammatory bowel disease, asthma). Results of a path analysis demonstrate that participants who internalized stigma and experienced stigma from healthcare workers anticipated greater stigma from healthcare workers. Participants who anticipated greater stigma from healthcare workers, in turn, accessed healthcare less and experienced a decreased quality of life

Chronic disease · Disease · Family medicine · Health care · Psychiatry · Quality of life (healthcare · Stigma (botany · Employment and Welfare Studies · Medicine · Mental Health Treatment and Access · Nursing · Psychology · Religion, Spirituality, and Psychology · Gerontology

  • From Stigma to Support

    Open Access•Paula E Wasner, Lilith A Whiley et al.•Gender Work and Organization•2026

  • Understanding Barriers to Hepatitis C Virus Care and Stigmatization From a Social Perspective

    Carla Treloar, Jake Rance et al.•Clinical Infectious Diseases•2013

  • Examining Effects of Anticipated Stigma, Centrality, Salience, Internalization, and Outness on Psychological Distress for People with Concealable Stigmatized Identities

    Open Access•Diane M Quinn, Michelle K Williams et al.•PLoS ONE•2014

  • Illness Experiences of Young Women With Rheumatoid Arthritis in South Korea

    Open Access•Wonhee Baek, Hyunjung Doo•Health Expectations•2026

  • Embodiment of concealable stigma disclosure through dynamics of movement and language

    Open Access•Hannah M Douglas, Stacie Furst‐Holloway et al.•Humanities and Social Sciences…•2022

  • Envisioning Telepresence Robots for Long Covid

    Pratyusha Ghosh, Arthi Haripriyan et al.•ACM Transactions on Human-Robot…•2026

  • Assessment of Self-Stigma, Self-Esteem, and Asthma Control

    Open Access•Sohail Ahmad, Ahmad Izuanuddin Ismail et al.•Frontiers in Public Health•2020

  • The impact of self-stigmatization on the mental health of female sex workers (FSWs)

    Open Access•Gizem Kaya, Olivia Kalinowski et al.•Frontiers in Public Health•2025

  • Fear of Stigma Mediates the Relationship between Internalized Stigma and Treatment-Seeking among Individuals with Substance Use Problems

    Madeline B Benz, Korine B Cabrera et al.•Substance Use & Misuse•2021

  • Acceptability and Effectiveness of Hepatitis C Care at Syringe Service Programs for People Who Inject Drugs in New York City

    Brandon Muncan, Ashly E Jordan et al.•Substance Use & Misuse•2021

  • Lessons from the First Wave of Covid-19 for Improved Medications for Opioid Use Disorder (Moud) Treatment

    Suzan M Walter, David C Perlman et al.•Substance Use & Misuse•2022

  • A battle for validation and understanding of people with functional neurological disorder (FND)

    Open Access•Kathleen Pirard, James Stiller et al.•Current Psychology•2026

  • Perceived stigma and psychological well-being in Spanish female survivors of Ipvaw

    Open Access•Vanessa Ferreira-Rodrigues, Encarnación Nouvilas-Pallejà et al.•Current Psychology•2025

  • Promoting Resilience and Well-Being of Young Adults with Diabetes Through Digital Storytelling in Arts-Based Research

    Yuhang Yuan, Shuhua Zhou et al.•Health Communication•2025

  • Memorable Messages About Fat Bodies Before, During, and After Pregnancy

    E D Basinger, Margaret M Quinlan et al.•Health Communication•2023

  • The role of shame and spontaneous self-affirmation among people with concealable stigmatized identities

    Open Access•Chelsea L Monheim, Karen E Wetzel et al.•The Journal of Social Psychology•2026

  • Surviving an Acid Attack Is Half the Battle, Living Life Is Another Half

    Open Access•Aastha Jain, Payal Sharma et al.•Human Arenas•2025

  • Integrating AI-assisted music workshops into diabetes care

    Chi Ying Lam, Nadera Assim•Journal of Applied Arts and Health•2026

  • Understanding the influence of stigma and discrimination for the functional limitation severity - psychological distress relationship

    Open Access•Robyn Lewis Brown•Social Science Research•2017

  • How might diabetes organisations address diabetes‐related stigma? Findings from a deliberative democratic case study

    Open Access•Heath Pillen, P Ward•Health Expectations•2022

  • Is it worth it

    Open Access•Julie Pétrin, Catherine Donnelly et al.•Health Expectations•2020

  • “HIV has taught us that you can survive anything”

    Open Access•Marija Pantelic, Zara Coombes et al.•AIDS Care•2024

  • Experiences of stigma in healthcare settings by people living with HIV in Ireland

    Elena Vaughan, Martin Power et al.•AIDS Care•2020

  • The cost of anticipating stigma

    Jason M Lo Hog Tian, J R Watson et al.•AIDS Care•2023

  • HIV and vicarious stigma in a cohort of people living with HIV in Italy

    Robert Zuzowski, Valentina Massaroni et al.•AIDS Care•2024

  • Chronic illness and social network bridging in later life

    Open Access•T Qu•Social Networks•2023

  • “They Treat you a Different Way

    Open Access•Anna C Martínez-Hume, Anna C Martinez‐hume et al.•Culture Medicine and Psychiatry•2017

  • Variations in endorsed and perceived mental health treatment stigma across U.S. higher education institutions

    M Gaddi, Daniel Ramirez et al.•Stigma and Health•2019

  • How Cisgender Clinicians Can Help Prevent Harm During Encounters With Transgender Patients

    Open Access•Antonio D García, Ximena López•The AMA Journal of Ethic•2022

  • Conceptualizing and measuring mental illness stigma

    Open Access•Annie B Fox, Valerie A Earnshaw et al.•Stigma and Health•2017

  • Perceived stress and suicidal behaviors in college students

    Jameson K Hirsch, Jessica Kelliher Rabon et al.•Stigma and Health•2017

  • The self-stigma process in criminal offenders

    Open Access•Kelly E Moore, June P Tangney et al.•Stigma and Health•2016

  • Depressive symptoms and sickle cell pain

    Open Access•Breanna M Holloway, Lakeya McGill et al.•Stigma and Health•2016

  • Self-stigma among criminal offenders

    Open Access•Kelly E Moore, Katherine C Milam et al.•Stigma and Health•2017

  • The experience of stigma and concealment in multiple sclerosis

    Open Access•Roma Maguire, Aisling Ahern et al.•Stigma and Health•2024

  • Experienced facial masking indirectly compromises quality of life through stigmatization of women and men with Parkinson’s disease

    Open Access•Hui‐ing Ma, Sarah D Gunnery et al.•Stigma and Health•2019

  • HIV-related stigma and discrimination in health care and health-related quality of life among people living with HIV in England and Wales

    Open Access•John Mark Wiginton, Sarah M Murray et al.•Stigma and Health•2021

  • The relationship between cognitive fusion, stigma, and well-being in people with multiple sclerosis

    Open Access•Abbey K Valvano, Abbey Valvano et al.•Journal of Contextual Behavioral…•2016

  • Translation and validation of the Arabic version of the Chronic Illness Anticipated Stigma Scale in Saudi patients with multiple sclerosis

    Open Access•Naseem Abdulmohi Alhujaili, Salhah Alsulami et al.•Frontiers in Psychiatry•2025

  • Early Maladaptive Schemas and Self-Stigma in People with Physical Disabilities

    Open Access•Anna Pyszkowska, Monika K Stojek•International Journal of…•2022

  • Cancer Survivors’ Disability Experiences and Identities

    Open Access•Susan Magasi, Hilary K Marshall et al.•International Journal of…•2022

  • Psychometric Validation of the Living with Chronic Illness Scale in Patients with Chronic Heart Failure

    Open Access•Leire Ambrosio, David Pérez-Manchón et al.•International Journal of…•2021

  • Employees’ experiences of the stigma of HIV in a retail organisation

    K P Moalusi•African Journal of AIDS Research•2018

  • Drug Addiction Stigma in the Context of Methadone Maintenance Therapy

    Open Access•Valerie A Earnshaw, Valerie Earnshaw et al.•International Journal of Mental…•2012

  • Intersectionality, special populations, needs and suggestions

    Open Access•Maji Hailemariam, Julia W Felton et al.•International Journal for Equity…•2020

  • Prevalence of HIV-related stigma manifestations and their contributing factors among people living with HIV in Sweden – a nationwide study

    Open Access•Lena Nilsson Schönnesson, Marie Dahlberg et al.•BMC Public Health•2024

  • Measuring public attitudes towards people living with chronic diseases in Arabic-speaking populations

    Open Access•Feten Fekih‐Romdhane, Sahar Obeid et al.•BMC Public Health•2023

  • An assessment of Ebola-related stigma and its association with informal healthcare utilisation among Ebola survivors in Sierra Leone

    Open Access•Peter Bai James, Jon Wardle et al.•BMC Public Health•2020

  • Socio-psychological factors associated with anticipated stigma toward Covid-19

    Open Access•Kana Fujii, Hideki Hashimoto•BMC Public Health•2023

  • Understanding stigma and attitudes towards hepatitis B among university students in Australia of Chinese and Vietnamese background

    Open Access•L Brener, Robyn Horwitz et al.•BMC Public Health•2024

  • How Does Stigma Affect People Living with HIV? The Mediating Roles of Internalized and Anticipated HIV Stigma in the Effects of Perceived Community Stigma on Health and Psychosocial Outcomes

    Open Access•Bulent Turan, Henna Budhwani et al.•AIDS and Behavior•2016

  • Internalized HIV and Drug Stigmas

    Open Access•Sarah K Calabrese, Sara E Burke et al.•AIDS and Behavior•2015

  • HIV Stigma Mechanisms and Well-Being Among PLWH

    Open Access•Valerie A Earnshaw, L R Smith et al.•AIDS and Behavior•2013

  • Structural Effects on HIV Risk Among Youth

    Open Access•Robin Lin Miller, Trevor Strzyzykowski et al.•AIDS and Behavior•2018

  • The Relationship Between Stigma and Health-Related Quality of Life in People Living with HIV Who Have Full Access to Antiretroviral Treatment

    Open Access•Maria Reinius, Maria Wiklander et al.•AIDS and Behavior•2018

  • Living with an invisible illness

    Open Access•Lacretia Carroll, J Carolyn Graff et al.•Quality of Life Research•2019

  • Development of the PROMIS pediatric stigma and extension to the PROMIS pediatric stigma

    Open Access•Jin‐Shei Lai, Cindy J Nowinski et al.•Quality of Life Research•2024

  • Care Transitions for People with Acquired Neurological Disability in the First 12 Months following Inpatient Rehabilitation

    Open Access•Yanfei Xie, Mandy Nielsen et al.•Health & Social Care in the…•2023

  • A systematic review of the effect of stigma on the health of people experiencing homelessness

    Open Access•Johanna Reilly, Iris Ho et al.•Health & Social Care in the…•2022

  • Optimising community health services in Australia for populations affected by stigmatised infections

    Open Access•Robyn Horwitz, L Brener et al.•Health & Social Care in the…•2022

  • The Effect of Neighborhood Disorganization on Care Engagement Among Children With Chronic Conditions Living in a Large Urban City

    Open Access•Sage J Kim, Molly A Martin et al.•Family & Community Health•2023

  • The Impact of Socioeconomic Factors on the HIV-Related Stigma of People Living With HIV in Turkey

    Open Access•Hülya Özkan Özdemir, Fatma Nur Karaman Kabadurmuş et al.•INQUIRY The Journal of Health…•2025

  • HIV-Related Internalized Stigma and Patient Health Engagement Model in an Italian Cohort of People Living With HIV

    Open Access•Valentina Massaroni, Valentina Delle Donne et al.•Psychological Reports•2022

  • Stigma Regarding HIV and Sexual Identity as Barriers to Accessing HIV Testing and Prevention Services Among Gay and Bisexual Migrants in Australia

    Open Access•Steven P Philpot, Limin Mao et al.•Sexuality Research and Social…•2022

  • Hepatitis C Stigma and Empowerment Through Positive Speaking in Sydney, Australia

    Open Access•Elena Cama, Elena J Cama et al.•Journal of Community & Applied…•2015

  • Confronting Barriers to Equitable Care

    Open Access•Laura Vanpuymbrouck, Susan Magasi et al.•Health & Social Care in the…•2024

  • Internalized Stigma and Stigma-Related Isolation Predict Women’s Psychological Distress and Physical Health Symptoms Post-Abortion

    Open Access•Aisling T O''Donnell, Tara O’Carroll et al.•Psychology of Women Quarterly•2018

  • The stigma system

    Open Access•R Friedman, Leslie D Williams et al.•Journal of Community Psychology•2022

  • Biopsychosocial Health Outcomes and Experienced Intersectional Stigma in a Mixed HIV Serostatus Longitudinal Cohort of Aging Sexual Minority Men, United States, 2008‒2019

    M Reuel Friedman, Qimin Liu et al.•American Journal of Public Health•2022

  • Longitudinal Stigma Reduction in People Living with HIV Experiencing Homelessness or Unstable Housing Diagnosed With Mental Health or Substance Use Disorders

    Manisha H Maskay, Howard J Cabral et al.•American Journal of Public Health•2018

  • Framing Mechanisms Linking HIV-Related Stigma, Adherence to Treatment, and Health Outcomes

    Bulent Turan, Abigail M Hatcher et al.•American Journal of Public Health•2017

  • A Loss of Moral Experience

    Gabriel R Galindo•American Journal of Public Health•2013

  • Fat on Campus

    Corey Stevens•Sociological Focus•2017

  • Ableism Special Issue Introduction

    Open Access•Kathleen R Bogart, Dana S Dunn•Journal of Social Issues•2019

  • The Subtle Side of Stigma

    Open Access•Rebecca E Young, Rebecca Young et al.•Journal of Social Issues•2019

  • Managing the Concealable Stigma of Criminal Justice System Involvement

    Open Access•Kelly E Moore, June P Tangney•Journal of Social Issues•2017

  • Identity Concealment and Chronic Illness

    Open Access•James Edward Cook, Jonathan E Cook et al.•Journal of Social Issues•2017

  • A new public health psychology to mend the chasm between public health and clinical care

    Perry N Halkitis•American Psychologist•2020

  • Stigma Associated with Classical Congenital Adrenal Hyperplasia in Women’s Sexual Lives

    Open Access•Heino F L Meyer-Bahlburg, Jananne Khuri et al.•Archives of Sexual Behavior•2018

  • Syndrome-Related Stigma in the General Social Environment as Reported by Women with Classical Congenital Adrenal Hyperplasia

    Open Access•Heino F L Meyer-Bahlburg, Jazmin Reyes-Portillo et al.•Archives of Sexual Behavior•2017

  • Functional limitation and depressive symptomatology

    Open Access•Robyn Lewis Brown•Stigma and Health•2016

  • Impact of ableist microaggressions on university students with self-identified disabilities

    Kayla Lett, Andreea Tamaian et al.•Disability & Society•2019

  • Incorporating intersectionality into psychology

    Lisa Rosenthal•American Psychologist•2016

  • Discredited” Versus “Discreditable

    Stephenie R Chaudoir, Valerie A Earnshaw et al.•Basic and Applied Social Psychology•2013

  • Preferred level of categorization as a strategy to manage chronic illness-related identity among individuals with type 1 versus type 2 diabetes

    Kristi A Costabile, Sarah E Boland et al.•Self and Identity•2019

  • Understanding Concealable Stigmatized Identities

    Open Access•Diane M Quinn, Valerie A Earnshaw•Social Issues and Policy Review•2011

  • Concealable Stigmatized Identities and Psychological Well‐Being

    Open Access•Diane M Quinn, Valerie A Earnshaw•Social and Personality Psychology…•2013

  • Subjective family SES and the internalization of vocational education stigma

    Open Access•Dan Cui, Wenping Zhao•Social Psychology of Education•2025

  • Navigating the social world with neck dystonia

    Open Access•Melanie Maxwell-Scott, Fiadhnait O’keeffe et al.•Journal of Health Psychology•2024

  • The micro and the macro

    Open Access•Vania Ranjbar, Andy Mckinlay et al.•Journal of Health Psychology•2016

  • If not me, who

    Open Access•Emily F Plackowski, Kathleen R Bogart•Qualitative Health Research•2023

  • Adapting stigma mechanism frameworks to explore complex pathways between intersectional stigma and HIV-related health outcomes among women living with HIV in Canada

    Open Access•Carmen H Logie, Charmaine C Williams et al.•Social Science & Medicine•2019

  • Bullying, internalized hepatitis (Hepatitis C virus) stigma, and self-esteem

    Open Access•Noor Ayesha, Ayesha Noor et al.•Journal of Health Psychology•2016

  • Gender differences in perception of quality of life in adults with and without chronic health conditions

    Open Access•Neusa Sica Da Rocha, Felipe B Schuch et al.•Journal of Health Psychology•2014

  • Confirmatory factor analysis of a myalgic encephalomyelitis and chronic fatigue syndrome stigma scale

    Open Access•Julia M Terman, Jessica M Awsumb et al.•Journal of Health Psychology•2020

  • The social sharing of emotions in HIV/Aids

    Open Access•Nicole Cantisano, Bernard Rimé et al.•Journal of Health Psychology•2013

  • A two-wave study on the health and relationship consequences of experienced stigma among individuals with concealable chronic health conditions

    Open Access•M Rosie Shrout, D J Weigel•Journal of Health Psychology•2021

  • The impact of concealable chronic health conditions on college students' academic outcomes

    Open Access•M Rosie Shrout, D J Weigel•Journal of Health Psychology•2022

  • The importance of illness perceptions, quality of life and psychological status in patients with ulcerative colitis and Crohn's disease

    Open Access•Tina L Rochelle, Helen Fidler•Journal of Health Psychology•2013

  • Healthy' individuals' perceptions of type 1 and type 2 diabetes cause and management

    Open Access•Gina Anderson-Lister, Gareth J Treharne•Journal of Health Psychology•2014

  • Mental illness stigma

    Open Access•N Rusch, Matthias C Angermeyer et al.•European Psychiatry•2005

  • From Conceptualizing to Measuring HIV Stigma

    Open Access•Valerie A Earnshaw, Stephenie R Chaudoir•AIDS and Behavior•2009

  • Reducing HIV-Related Stigma

    Open Access•Julie Pulerwitz, Annie Michaelis et al.•Public Health Reports•2010

  • Interventions to Reduce HIV/Aids Stigma

    Lisanne Brown, Kate Macintyre et al.•AIDS Education•2003

  • The Effect of Perceived Stigma from a Health Care Provider on Access to Care Among a Low-Income HIV-Positive Population

    Janni J Kinsler, Michael D Wong et al.•AIDS Patient Care and STDs•2007

  • Measuring stigma in people with HIV

    Open Access•Barbara Berger, Barbara E Berger et al.•Research in Nursing & Health•2001

  • Stigma

    Erving Goffman•Stigma•2009

  • Validation of the HIV/Aids Stigma Instrument—PLWA (Hasi-P)

    William L Holzemer, Leana R Uys et al.•AIDS Care•2007

  • Development of Parallel Scales to Measure HIV-Related Stigma

    Open Access•Maretha J Visser, Maretha Visser et al.•AIDS and Behavior•2008

  • Development and Psychometric Assessment of a Multidimensional Measure of Internalized HIV Stigma in a Sample of HIV-positive Adults

    Open Access•Jennifer N Sayles, Ron D Hays et al.•AIDS and Behavior•2008

  • Experiences of Social Stigma and Implications For Healthcare Among a Diverse Population of HIV Positive Adults

    Open Access•Jennifer N Sayles, Gery W Ryan et al.•Journal of Urban Health•2007

  • Living with a concealable stigmatized identity

    Diane M Quinn, Stephenie R Chaudoir•Journal of Personality and Social…•2009

  • Principles and Practice of Structural Equation Modeling

    Open Access•Nassim Tabri, Craig M Elliott•Canadian Graduate Journal of…•2012

  • Understanding Labeling Effects in the Area of Mental Disorders

    Bruce G Link•American Sociological Review•1987

  • Examining attribution model of self-stigma on social support and psychological well-being among people with HIV+/Aids

    Open Access•Winnie W S Mak, Rebecca Y M Cheung et al.•Social Science & Medicine•2007

  • Health-related stigma among women with lymphatic filariasis from the Dominican Republic and Ghana

    Open Access•Bobbie Person, L Kay Bartholomew et al.•Social Science & Medicine•2009

  • HIV-related stigma

    Open Access•Wayne T Steward, Gregory M Herek et al.•Social Science & Medicine•2008

  • Living with Ankylosing Spondylitis

    Open Access•Kate E Hamilton-West, Lyn Quine•Journal of Health Psychology•2009

  • Stigmatization, Physical Illness and Mental Health in Primary Ciliary Dyskinesia

    Open Access•I C Mcmanus, G F Stubbings et al.•Journal of Health Psychology•2006

  • Critical Delays in HIV Testing and Care

    Open Access•Margaret A Chesney, Ashley Smith et al.•American Behavioral Scientist•1999

  • The Prevalence, Distribution, and Mental Health Correlates of Perceived Discrimination in the United States

    R C Kessler, Kristin D Mickelson et al.•Journal of Health and Social…•1999

  • The Effects of Stigma on the Psychological Well-Being and Life Satisfaction of Persons with Mental Illness

    Fred E Markowitz•Journal of Health and Social…•1998

  • Being epileptic

    Open Access•Graham Scambler, Anthony Hopkins•Sociology of Health & Illness•1986

Obras citantes distintas105
Citações por ano7
Intervalo de citações2011 - 2026 (16)
Velocidade de citaçãocurrent
Altamente citadoSim
Tipos de citaçãoNeutras: 104
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