An 'Overwhelming Illness
Women’s Experiences of Learning to Live with Chronic Fatigue Syndrome/Myalgic Encephalomyelitis
Bibliographic Data
| ID | 4228355 |
|---|---|
| Authors | Catherine R Edwards (Barnsley Primary Care Trust, UK), Catherine Edwards (0000-0001-6486-0948), Alan Reynolds Thompson (0000-0001-6788-7222, University of Sheffield), Andrew R Thompson (0000-0002-1384-2229), Alan Blair (0000-0002-1039-4766, Chesterfield Primary Care Trust, UK) |
| Year | 2007 |
| Volume | 12 |
| Issue | 2 |
| Pages | 203-214 |
| Publication date | 2007-03-01 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Journal of Health Psychology (JOURNAL) |
| Journal identifiers | ISSN: 1359-1053 • E-ISSN: 1461-7277 |
| Publisher | SAGE Publications Inc (PUBLISHER) |
| DOI | 10.1177/1359105307071747 |
| PMID | 17284485 |
| OpenAlex | W2012632029 |
| Language | EN |
| Citations received | 22 |
| References cited | 35 |
The processes through which people learn to live with CFS/ME are poorly understood and have not been rigorously explored within the literature. Semi-structured interviews were conducted with eight women and analysed using interpretative phenomenological analysis. Participants initially described being 'overwhelmed' by CFS/ME. Attempts at seeking help were unsatisfactory and participants described feeling let down and disbelieved. Participants reacted to this by identifying types of 'self-help' and assertively taking more responsibility for their illness and its treatment. Acquiring social support and greater knowledge were key mediating factors in the emergence of control and acceptance. The relevance of the themes to existing research and the implications for clinical practice are considered
Psychiatry · Fibromyalgia and Chronic Fatigue Syndrome Research · Health, psychology, and well-being · Medicine · Psychology · Psychosomatic Disorders and Their Treatments
Nonimprovement in Chronic Fatigue Syndrome
Factors impacting the illness trajectory of post-infectious fatigue syndrome
The circuit of symbolic violence in chronic fatigue syndrome (CFS)/myalgic encephalomyelitis (ME) (I)
Art-making and identity work
The real me shining through M.E.”
The lived experience of chronic physical health conditions
Making space for disability studies within a structurally competent medical curriculum
The biopolitics of CFS/ME
Holistic or harmful? Examining socio-structural factors in the biopsychosocial model of chronic illness, ‘medically unexplained symptoms’ and disability
Experiences of higher education for students with chronic illnesses
Illness Intrusiveness in Myalgic Encephalomyelitis
Sleep Apnea and Psychological Functioning in Chronic Fatigue Syndrome
Self within a climate of contention
Epistemic and institutional recognition work in changing conditions of social visibility
Feel the Feeling
The psychological impact of dependency in adults with chronic fatigue syndrome/myalgic encephalomyelitis
A relational analysis of an invisible illness
The need for a standardized conceptual term to describe invalidation of patient symptoms
Acceptance and identity change
Factors facilitating patient satisfaction among women with medically unexplained long-term fatigue
Life according to ME
Embodying occupational overuse syndrome
The Shifting Perspectives Model of Chronic Illness
The personal experience of chronic benign lower back pain
The Chronic Fatigue Syndrome
Chronic Fatigue Syndrome
Significant Other Responses Are Associated With Fatigue and Functional Status Among Patients With Chronic Fatigue Syndrome
Coping theory and research
Sociosomatics and Illness Course in Chronic Fatigue Syndrome
Toward A Model of Social Course in Chronic Illness
Adjustment to threatening events
The Young Person's Perspective on Living and Coping with Diabetes
End stage renal disease (ESRD) and the marital dyad
The Experience of Stroke for Men in Retirement Transition
Illness behavior and the sick role in chronic disease
Patients' perceptions of medical care in chronic fatigue syndrome
Adaptive Tasks, Coping and Quality of Life of Chronically Ill Patients
Chronic illness as biographical disruption
Loss of self
| Unique citing works | 22 |
|---|---|
| Citations per year | 1,22 |
| Citation span | 2008 - 2025 (18) |
| Citation velocity | recent |
| Highly cited | No |
| Citation types | Neutral: 22 |