A qualitative investigation of reasoning behind decisions to decline participation in a research intervention
A study-within-a-trial
Bibliographic Data
| ID | 4228587 |
|---|---|
| Authors | Christopher P Dwyer (0000-0001-5935-4338, National University of Ireland), Anusha Moses (0000-0002-0267-571X, National University of Ireland), Fionnuala M Rogers (National University of Ireland), Fionnuala Rogers (0000-0002-1001-7653), Dympna Casey (0000-0001-5341-597X, National University of Ireland), Robert Joyce (0000-0003-4667-5938, National University of Ireland), Robert A Joyce (0000-0001-5572-0804), Sinéad M Hyne (0000-0002-3199-7355, National University of Ireland) |
| Year | 2023 |
| Volume | 28 |
| Issue | 4 |
| Pages | 374-387 |
| Publication date | 2023-03-01 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Journal of Health Psychology (JOURNAL) |
| Journal identifiers | ISSN: 1359-1053 • E-ISSN: 1461-7277 |
| Publisher | SAGE Publications Inc (PUBLISHER) |
| DOI | 10.1177/13591053211037736 |
| PMID | 34355599 |
| OpenAlex | W3190210290 |
| Language | EN |
| Citations received | 1 |
| References cited | 22 |
The current study-within-a-trial explored individuals' decisions to decline participation in research trialling a chronic illness-focused therapy (i.e. multiple sclerosis). Four themes were identified from seven semi-structured interviews with participation decliners and were confirmed by the host trial's Patient & Public Involvement (PPI) panel: acknowledgement of the value of research; 'fit' of the study; misinterpretation of participant information; and 'ignorance is bliss' - discussed in light of theory and research. This study-within-a-trial extends research on trial recruitment and participation decline; while also suggesting that PPI can be utilised in both a practical and impactful manner
Acknowledgement · BLISS · Ignorance · Intervention (counseling · Political science · Psychiatry · Qualitative research · Social science · Sociology · Value (mathematics · Health Policy Implementation Science · Medicine · Mental Health and Patient Involvement · Patient-Provider Communication in Healthcare · Psychology · Clinical Psychology · Gerontology · Social Psychology
Randomised controlled trials – the gold standard for effectiveness research
Qualitative research in health care
Consolidated criteria for reporting qualitative research (Coreq)
The Sage Handbook of Qualitative Research in Psychology
Focus group method and methodology
One size fits all? What counts as quality practice in (reflexive) thematic analysis
Using thematic analysis in psychology
Focus Groups-What Is the Same, What Is New, What Is Next
| Unique citing works | 1 |
|---|---|
| Citations per year | 1 |
| Citation span | 2025 - 2025 (1) |
| Citation velocity | recent |
| Highly cited | No |
| Citation types | Neutral: 1 |