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A qualitative study of patients' experience of living with inflammatory bowel disease

A preliminary focus on the notion of adaptation

Bibliographic Data

ID4228599
AuthorsLawrence Matini (0000-0002-6163-5371, University of Surrey), Jane Ogden (0000-0003-4271-5621, University of Surrey)
Year2016
Volume21
Issue11
Pages2493-2502
Publication date2016-11-01
Open AccessYes
TypeARTICLE
VenueJournal of Health Psychology (JOURNAL)
Journal identifiersISSN: 1359-1053 • E-ISSN: 1461-7277
PublisherSAGE Publications Inc (PUBLISHER)
DOI10.1177/1359105315580463
PMID25904653
OpenAlexW2000363719
LanguageEN
Citations received3
References cited21

This study investigates the lived experience of inflammatory bowel disease with the aim of examining the process of adapting to life with inflammatory bowel disease. Adaptation is often referred to as the desirable outcome in chronic illnesses such as inflammatory bowel disease; yet little is known as to how this is achieved. A total of 10 Crohn's and 12 ulcerative colitis patients recruited from online support networks participated in individual, semi-structured interviews. The study has identified the notion of a 'new normal' as central to adaptation, whereby patients seek to recover a sense of normality by finding an equilibrium between their lives before and after diagnosis

Adaptation (eye · Disease · Focus (optics · Focus group · Intensive care medicine · Pathology · Qualitative research · Sociology · Inflammatory Bowel Disease · Medicine · Microscopic Colitis · Neuroscience · Psychology · Stoma care and complications

  • ‘Nobody wants to talk about that stuff’

    Open Access•Elia-Jade Edwards, Megan Oaten et al.•Psychology & Health•2026

  • Self-perception and adjustment to Crohn's disease in emerging and young adults

    Open Access•Nathalie Touma, Carolina Baeza‐velasco et al.•Pratiques Psychologiques•2024

  • Much more than a biological phenomenon

    Open Access•Hannah Johnson, Hannah E Johnson et al.•Journal of Health Psychology•2025

  • Symbolic Interactionism

    Herbert Blumer•Symbolic Interactionism•1986

  • Using thematic analysis in psychology

    Open Access•Braun, Virginia Braun et al.•Qualitative Research in Psychology•2006

  • The Fight for 'Health-related Normality

    Open Access•Nicola J Hall, Nicola Hall et al.•Journal of Health Psychology•2005

  • Loss of self

    Open Access•Kathy Charmaz•Sociology of Health & Illness•1983

Citations per year1.5
Citation span2024 - 2026 (3)
Highly citedNo

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