Identifying barriers to help-seeking for non-motor symptoms in people with Parkinson's disease
Bibliographic Data
| ID | 4228766 |
|---|---|
| Authors | Catherine S Hurt (0000-0003-1571-0040, City, University of London), Lorna Rixon (0000-0002-0911-7366, City, University of London), K Ray Chaudhuri (King's College Hospital), К Ray Chaudhuri (0000-0003-2815-0505), Rona Moss-Morris (King's College London), Rona Moss‐morri (0000-0002-2927-3446), Mike Samuel (King's College Hospital), Richard G Brown (0000-0001-9021-0172, King's College London) |
| Year | 2019 |
| Volume | 24 |
| Issue | 5 |
| Pages | 561-571 |
| Publication date | 2019-04-01 |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Journal of Health Psychology (JOURNAL) |
| Journal identifiers | ISSN: 1359-1053 • E-ISSN: 1461-7277 |
| Publisher | SAGE Publications Inc (PUBLISHER) |
| DOI | 10.1177/1359105316683239 |
| PMID | 28810364 |
| OpenAlex | W2594028786 |
| Language | EN |
| References cited | 27 |
Non-motor symptoms of Parkinson's disease have a significant impact on quality of life. Despite this, many non-motor symptoms remain unreported by patients and consequently untreated. This study explored barriers to help-seeking using two theoretical frameworks, the Common Sense Model of illness perception and Theoretical Domains Framework. A total of 20 participants completed semi-structured interviews to explore symptom beliefs and help-seeking behaviour. Uncertainty about the relationship of non-motor symptoms to Parkinson's disease and lack of clarity around treatments were common. Embarrassment and communication difficulties were common for potentially sensitive symptoms such as sexual dysfunction. Symptom perceptions and beliefs about help-seeking acted as barriers to reporting non-motor symptoms
CLARITY · Disease · Embarrassment · Help-seeking · Mental health · Motor symptoms · Parkinson's disease · Perception · Psychiatry · Psychotherapist · Quality of life (healthcare · Autism Spectrum Disorder Research · Behavioral and Psychological Studies · Medicine · Parkinson's Disease Mechanisms and Treatments · Psychology · Clinical Psychology · Social Psychology
Conceptual measurement framework for help-seeking for mental health problems
Validation of the theoretical domains framework for use in behaviour change and implementation research
The Revised Illness Perception Questionnaire (IPQ-R)
A systematic review of the factors associated with delays in medical and psychological help-seeking among men
The qualitative content analysis process
Developing and evaluating complex interventions
| Highly cited | No |
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