Experiences of stigma over the lifetime of people with xeroderma pigmentosum
A qualitative interview study in the United Kingdom
Bibliographic Data
| ID | 4228961 |
|---|---|
| Authors | Rebecca Anderson (0000-0001-8925-7002, King's College London), Jessica Walburn (0000-0001-7396-0182, King's College London), Myfanwy Morgan (0000-0001-5532-8941, King's College London) |
| Year | 2019 |
| Volume | 24 |
| Issue | 14 |
| Pages | 2031-2041 |
| Publication date | 2019-12-01 |
| Peer Reviewed | Yes |
| Open Access | Yes |
| Type | ARTICLE |
| Venue | Journal of Health Psychology (JOURNAL) |
| Journal identifiers | ISSN: 1359-1053 • E-ISSN: 1461-7277 |
| Publisher | SAGE Publications Inc (PUBLISHER) |
| DOI | 10.1177/1359105317714643 |
| PMID | 28810476 |
| OpenAlex | W2680841430 |
| Language | EN |
| Citations received | 5 |
| References cited | 20 |
This study explored experiences of stigma in 25 adults with xeroderma pigmentosum. Analysis of semi-structured interviews revealed the changing nature of stigma over the lifetime. Bullying occurred in childhood, whereas adults were questioned about both their photoprotection and skin damage, often resulting in internalised feelings of stigma. Resilience and rejection of feelings of stigma increased with age and experiences of stigma differed across cultures. Findings indicate a need to develop social skills training to help people reject feelings of stigma. Future research should explore perspectives of families, friends and formal institutions and their potential to cause or reduce feelings of stigma
Developmental psychology · Family medicine · Feeling · Psychiatry · Qualitative research · Social stigma · Sociology · Stigma (botany · Xeroderma pigmentosum · DNA Repair Mechanisms · Family Support in Illness · Medicine · Polyomavirus and related diseases · Psychology · Clinical Psychology · Genetics · Social Psychology
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| Unique citing works | 5 |
|---|---|
| Citations per year | 0.63 |
| Citation span | 2018 - 2026 (9) |
| Citation velocity | current |
| Highly cited | No |
| Citation types | Neutral: 4 |