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Towards a comprehensive psychosocial profile of the family caregiver of people with dementia

Bibliographic Data

ID4407206
AuthorsSara Jiménez García-Tizón (0000-0003-3960-8665, Universidad de Salamanca, corresponding author), Ana Belén Navarro Prados (0000-0003-1931-4619, Universidad de Salamanca), María Belén Bueno Martínez (0000-0001-6587-9835, Universidad de Salamanca)
Year2025
Volume38
Issue1
Pages6-6
Publication date2025-03-20
Open AccessYes
TypeARTICLE
VenuePsicologia Reflexão e Crítica (JOURNAL)
Journal identifiersISSN: 0102-7972 • E-ISSN: 1678-7153
PublisherSpringer Science and Business Media LLC (PUBLISHER)
DOI10.1186/s41155-025-00342-5
PMID40111622
OpenAlexW4408674088
LanguageEN
References cited33

Background The profile of caregivers focuses on socio-demographic variables (age, gender, kinship, and educational level). However, buffer variables (e.g., dysfunctional thoughts) and indicators of the impacts of caregiving (e.g., stress) are often overlooked. Objective The study aims to offer a comprehensive view of the profile of the family caregiver of people with dementia by considering aspects contemplated in theoretical explanatory models of care. Methods It was based on a cross-sectional design. Socio-demographic and care-related characteristics and variables of the consequences of caregiving and related buffers were evaluated for 40 family caregivers of people with dementia. The Short form of Social Problem-Solving Inventory-Revised (SPSI-R-25), the Leisure Time Satisfaction Survey (LTS), the Revised Scale for Caregiving Self-Efficacy (RSCSE), the Escala de Habilidades Sociales (EHS), the Psychosocial Support Questionnaire (PSQ), the Cuestionario de Pensamientos Disfuncionales (CPD), the Caregiver Burden Interview (CBI), the Center for Epidemiologic Studies-Depression Scale (CES-D), the Perceived Stress Scale (PSS) and the World Health Organization Quality of Life Assessment-AGE (WHOQOL-AGE) were utilized. Descriptions of the variables and contrast tests (chi-square tests, t-tests, and two-factor ANOVAs) were made and used to compare the differences according to gender and kinship. Results Family caregivers are women, typically around 60 years old, wives or daughters, married, with primary/secondary education, who spend long hours caring with little support. They presented a low level of social and problem-solving skills, received little social support, had low self-efficacy and quality of life, highly dysfunctional thoughts, overload, depressive symptomatology, and stress. Significant differences were found according to kinship in educational level, employment status, hours per day dedicated to care time, and contemplating placing the person in a nursing home. Significant differences by kinship were also found in self-efficacy for responding to disruptive behaviors, perceived social support, and stress. Spouses have lower levels of this type of self-efficacy and have higher levels of stress but perceive greater social support. Males have higher levels of dysfunctional thoughts. Conclusion This study facilitates the identification of the specific needs of caregivers, to provide them with individualized interventions. Spouses and offspring present different needs and therefore interventions should be different

Caregiver burden · Dementia · Disease · Dysfunctional family · Family caregivers · Kinship · Psychiatry · Psychosocial · Quality of life (healthcare) · Scale (ratio) · Social support · Clinical Psychology · Dementia and Cognitive Impairment Research · Family Caregiving in Mental Illness · Medicine · Nursing care and research · Psychology · Social Psychology · Gerontology

  • Psychometric Properties of a European Spanish Version of the Perceived Stress Scale (PSS)

    Open Access•Eduardo Remor•The Spanish journal of psychology•2006

  • The CES-D Scale

    Open Access•Lenore Sawyer Radloff•Applied Psychological Measurement•1977

  • Relatives of the Impaired Elderly

    Steven H Zarit, Karen E Reever et al.•The Gerontologist•1980

  • OUP accepted manuscript

    Open Access•Joukje Swinkels, Theo G Van Tilburg et al.•The Journals of Gerontology…•2017

  • Social Isolation Among Spousal and Adult-Child Caregivers

    Open Access•Lun Li, Andrew V Wister et al.•The Journals of Gerontology…•2020

  • Diversity in Older Adults’ Care Networks

    Maarten Jacobs, Marianne T Jacobs et al.•The Journals of Gerontology…•2016

  • The Revised Scale for Caregiving Self-Efficacy

    Ann M Steffen, Christine L Mckibbin et al.•The Journals of Gerontology…•2002

  • Do the caregiving spouses of people with dementia in Spain perceive the same barriers for taking part in interventions as caregiving offspring

    Open Access•Sara Jiménez García-Tizón, María Belén Bueno Martínez et al.•Health & Social Care in the…•2021

  • Differences within Differences

    Open Access•Stuart A Cohen, Natalie J Sabik et al.•Journal of Cross-Cultural…•2019

  • Using thematic analysis in psychology

    Open Access•Braun, Virginia Braun et al.•Qualitative Research in Psychology•2006

  • Caregiving and the Stress Process

    Leonard I Pearlin, Joseph T Mullan et al.•The Gerontologist•1990

  • A Global Measure of Perceived Stress

    Sheldon Cohen, Thomas W Kamarck et al.•Journal of Health and Social…•1983

  • Thematic networks

    Open Access•Jennifer Attride-Stirling, Jennifer Attride‐Stirling•Qualitative Research•2001

Highly citedNo

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