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Genetic Services, Economics, and Eugenics

Bibliographic Data

ID4516045
AuthorsDiane B Paul, Diane Β Paul (0000-0003-4053-0121, University of Massachusetts Amherst, corresponding author)
Year1998
Volume11
Issue3-4
Pages481-491
Publication date1998-01-01
Peer ReviewedYes
Open AccessYes
TypeARTICLE
VenueScience in Context (JOURNAL)
Journal identifiersISSN: 0269-8897 • E-ISSN: 1474-0664
PublisherCambridge University Press (CUP) (PUBLISHER)
DOI10.1017/s0269889700003161
PMID15168675
OpenAlexW2134347998
LanguageEN
Citations received4
References cited24

The ArgumentWhat are the aims of genetic services? Do any of these aims deserve to be labeled "eugenics"? Answers to these strenuously debated questions depend not just on the facts about genetic testing and screening but also on what is understood by "eugenics," a term with multiple and contested meanings. This paper explores the impact of efforts to label genetic services "eugenics" and argues that attempts to protect against the charge have seriously distorted discussion about their purpose(s). Following Ruth Chadwick, I argue that the existence of genetic services presupposes that genetic disease is undesirable and that means should be offered to reduce it. I further argue that the economic cost of such disease is one reason why governments and health care providers deem such services worthwhile. The important question is not whether such cost considerations constitute "eugenics," but whether they foster practices that are undesirable and, if so, what to do about them. The wielding of the term "eugenics" as a weapon in a war over the expansion of genetic services, conjoined with efforts to dissociate such services from the abortion controversy, has produced a rhetoric about the aims of these services that is increasingly divorced from reality. Candor about these aims is a sine qua non of any useful debate over the legitimacy of the methods used to advance them

Biology · Environmental ethics · Eugenics · Genetic testing · Law and economics · Legitimacy · Political science · Politics · Rhetoric · Sine qua non · Sociology · Biomedical Ethics and Regulation · Ethics in Clinical Research · Law · Philosophy · Reproductive Health and Technologies · Genetics

  • Prenatal diagnosis

    Open Access•Ilana Löwy•Studies in History and Philosophy…•2014

  • The Politics of Life Itself

    Nikolas Rose•The Politics of Life Itself•2007

  • The Emergence of Genetic Counseling in Sweden

    Open Access•Maria Björkman•Science in Context•2015

  • The Politics of Life Itself

    Open Access•Nikolas Rose•Theory Culture & Society•2001

  • Backdoor to Eugenics

    Troy Duster•Backdoor to Eugenics•2004

  • Genethics

    David Heyd•Genethics•1992

  • Bad Axioms in Genetic Engineering

    C Keith Boone, Catherine Boone•The Hastings Center Report•1988

  • At Law

    George J Annas•The Hastings Center Report•1989

  • Reasons and Persons

    Derek Parfit•Reasons and persons•1986

  • From Eugenics to Medical Genetics

    Open Access•Diane Β Paul•Journal of Policy History•1997

  • A benefit-cost analysis of amniocentesis

    Ralph L Andreano, Daniel W Mccollum•Biodemography and Social Biology•1983

  • The Lives to Come

    Graham Lyons, Joseph Wayne Smith et al.•Population and Development Review•1997

  • Ethics and population

    Open Access•Hélène Bergues, Michael D Bayles•Population•1977

Unique citing works4
Citations per year0,16
Citation span2001 - 2015 (15)
Citation velocityhistorical
Highly citedNo
Citation typesNeutral: 4

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